I wish my mother had this site when my dad was diagnosed with ALS. She did so much on her own. It is good to share and communicate regarding this disease. My father was diagnosed in 2002 although he had signs in 2000. He passed away on 2/5/06 I am hoping to find someone who knows what I am experiencing right now. It is still so hard. I will say this, my father received more love in the last couple of years of his life than most people get in a lifetime. As a family we grew individually and towards each other. I am not saying that this disease was a blessing but I do believe a lot of good did come out. Right now I am struggeling to sort out the grief, sadness and anger. If anyone would like to share please email me at [email protected]. I don't want to discourage anyone. I do feel a lot of attention is on this "orphan" disease and that a cure or treatment is SO CLOSE. I will continue to volunteer with my ALS assocation and do what ever I can.