Paty,
What does the S.D. ALS Assoc. do? I live in Fallbrook, CA
I have had PLS for many years seeing various Neurologists as I manuver around my insurance. All confirm PLS. All can do nothing about it. I have " slowly progressed" to can't walk and losing control of arms & hands.
I signed-up with NORD years ago and they just send me solicitations for money.
Jon