SJones
New member
- Joined
- Jun 28, 2022
- Messages
- 7
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Looking for advice please. My symptoms began a year and a half ago. Left leg muscle cramping with twitching in that same thigh muscle. I'm not going to ramble each detail but advancing to today progression has been constant involving both legs, very weak, cramping and twitching muscles in both. I have seen neuromuscular drs telling them all my symptoms and progression. Hard to walk. Had FVC test done in Feb showed slight weakness of chest. Have consistent hyperflexia and bilat Hoffman sign per each neuromuscular exam. Have excessive salivation and mucous in throat last couple months. Z I tell my recent neuromuscular Dr all of this but just says see u in 6 months can't give u a diagnosis now but it might be MND I have had every blood test,scan, muscle biopsy MRI. U name it all negative except slight lower spine issues. See same neuromuscular Dr tomorrow because I can't wait 6 months. I am suffering. Should I demand another emg? Muscle biopsy was done for myopathies neg results. Arms are cramping etc. I'm a mess. 1st 2 emg's showed L5S1 mild problems. Last emg I will show. Lousy at attaching files. Thank you for your valuable time