chukarb
New member
- Joined
- Jun 12, 2021
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Symptoms are progressing and I am worried about ALS. 49 year old male. Looking for advice. Symptoms started about in Nov. 2019: glutes ached all the time, difficult time sitting for extended periods of time. Right inner groin and right inguinal area ached intermittently. Visited urologist, CT of pelvis was normal. Referred me to PT. Performed PT and yoga for 4 months with minimal improvement before COVID happened.
Was referred to a Neurosurgeon by my PCP for the inner groin discomfort/aches (not sure why my PCP referred me to a neurosurgeon). Physical exam with Neurosurgeon in August 2020 was normal. Neurosurgeon referred me to a sports medicine clinic. October 2020 noticed muscle tightening (primarily in my legs/hips), especially at night. Performed PT w/ sports clinic from Oct-Dec. 2020 with some stabilization in the pelvis but no real improvement.
Blood tests each year (all within normal range). Noticed right foot weakness in Jan. 2021. Noticed right inner groin ache and discomfort extended into hamstring area and calves. Another CT of pelvis and chest in Feb. 2021 was unremarkable. March 2021 right hemibody aching, right face ached, and right frontal node ached. Brain MRI in March 2021 was unremarkable.
Finally received a referral to a Neurologist in April 2021. Neurological exam was unremarkable (thought it was a generalized anxiety disorder). We discussed NCS/EMG and MRI of cervical spine. NCS/EMG in May 2021 came back normal (needle/EMG tests were on right side in various locations, upper and lower extremities). MRI of cervical spine didn't show anything significant. Since May EMG, noticed additional symptoms, including muscle twitches/fasics in both legs, and additional weakness and aches in arms (near biceps and right forearm), left inner groin aches. Noticed muscle atrophy in my arms recently (skin wrinkles and loss of muscle mass).
Discussed performing another NCS/EMG w/ the neurologist on the phone and he recommended waiting a minimum of 6 months. Neurologist thought I may have a Functional Neurological Disorder (FND), referred me another PT and physiatrist. Wondering if I shouldn't get a second opinion from another Neurologist?
Was referred to a Neurosurgeon by my PCP for the inner groin discomfort/aches (not sure why my PCP referred me to a neurosurgeon). Physical exam with Neurosurgeon in August 2020 was normal. Neurosurgeon referred me to a sports medicine clinic. October 2020 noticed muscle tightening (primarily in my legs/hips), especially at night. Performed PT w/ sports clinic from Oct-Dec. 2020 with some stabilization in the pelvis but no real improvement.
Blood tests each year (all within normal range). Noticed right foot weakness in Jan. 2021. Noticed right inner groin ache and discomfort extended into hamstring area and calves. Another CT of pelvis and chest in Feb. 2021 was unremarkable. March 2021 right hemibody aching, right face ached, and right frontal node ached. Brain MRI in March 2021 was unremarkable.
Finally received a referral to a Neurologist in April 2021. Neurological exam was unremarkable (thought it was a generalized anxiety disorder). We discussed NCS/EMG and MRI of cervical spine. NCS/EMG in May 2021 came back normal (needle/EMG tests were on right side in various locations, upper and lower extremities). MRI of cervical spine didn't show anything significant. Since May EMG, noticed additional symptoms, including muscle twitches/fasics in both legs, and additional weakness and aches in arms (near biceps and right forearm), left inner groin aches. Noticed muscle atrophy in my arms recently (skin wrinkles and loss of muscle mass).
Discussed performing another NCS/EMG w/ the neurologist on the phone and he recommended waiting a minimum of 6 months. Neurologist thought I may have a Functional Neurological Disorder (FND), referred me another PT and physiatrist. Wondering if I shouldn't get a second opinion from another Neurologist?
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