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cyndileec

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Learn about ALS
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Uni
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OK
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Norman
I just have one question. Was anyone told they might have MS but later the doctor decided it was actually ALS?

The reason I’m asking is I’ve been seeing an internal medicine doctor for about 8 months. At the beginning he said that my symptoms fit with MS but my MRI’s I had done were not conclusive for MS so he decided we would wait and see if anything got better or worse. That was October of last year. Over that time I have developed some fasciculation In my fingers and other random places , my thighs have gotten spastic and weaker but the symptom that changed his mind was my left arm has developed hyper reflexes and is getting weaker. A few weeks after that my right arm has began to show hyper reflexes as well. He told me these new symptoms could be a sign of something more serious than MS. It could be Lou Gehrig's disease. He is getting me in to see neurologist. ALS has never come up until now.
 
With the types and locations of the twitching you describing, I'm surprised he mentioned ALS. I see no reason to think about ALS in your case.


I don't know of any reason an MS diagnosis would turn to ALS.


Don't worry too soon. You wrote no reason to suspect ALS.
 
I have no idea why an internist would offer an opinion on a neurological problem. It sounds like time to go back to your primary care physician and start there. Next advise is to stay away from dr google. Punch in cough and suddenly you have stage 4 lung cancer. For more info please read the pinned post at the top of this forum titled Please Read Before Posting.I wish you luck.
Vincent
 
I agree with Mike but I'd let a neurologist sort it all out. With what you described, there are tons on things on the table and ALS wouldn't be at the top of the list.

Let us know what the neuro says.

Vincent, I'm assuming the internist is the primary care doc.
 
A neuro is the place to go to sort out MS, ALS or anything else. We can't diagnose you here. The neuro will order an EMG and conduct other tests, at which point your diagnosis, if any, will be much clearer. All the best.

Best,
Laurie
 
The majority of physicians do not have sufficient knowledge to be telling any patient “ It could be ALS”. Seriously, the condition effects so few people and so little is known about it that I firmly believe only Nuerologists who are also Neuromuscular Specialists should even say that to anyone.

Best wishes and as everyone here has said, please see a specialist.
 
Thank you all for you comments. I have a referral to see a neurologist. Hopefully I will know something soon. Thanks again!
 
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