Manfree
New member
- Joined
- Dec 22, 2018
- Messages
- 7
- Reason
- Learn about ALS
- Country
- UKR
- State
- ukr
- City
- Kyiv
Hi everybody.
I am man 29.
My story started a year ago. Something around 01.18
I started to feel strange feeling in upper side of my right feet. It is difficult to describe. Like sock was tight (without sock).
I visited doctor, he recommended me antidepressants, (I took them until Spring without any effect on my feet).
In summer I started feel twitching (fascicuations) in my calf muscle on right leg, then in two weeks in left too then in all body (of course I was nervous about it).
I visited doctor, he found higher symmetrical reflexes on knees and he send me on EMG, which was clear.
In a 1.5 month I felt that was hard to walk. I did not feel clinical weakness, but my right leg become tired much earlier then left. Sometimes I could walk several km, sometimes it tired in 400m. Also I felt liight pain in problem muscle.
I visited doctor again, he send me again on EMG(in a month after first) - in this time it was not full clear, I had fibrillations in problem muscle(in problem leg) amplitude +80%, duration +13%, and no in other muscles on same leg, single fasciculations in some muscles of the body. Result was like: chronic light denervation-reinervation process in right leg, no ALS.
After that in one week on right leg I can not feel that I tired any more, just light feeling.
But I started started feel spasms in legs, rarely convulsions and activity most time on most muscles on my legs.
EMG again(in 2 month after second). In that day I felt better - less twitching. Result: No fibrillations and fasciculation's in any muscles (strange... I can feel it most time and see in morning and evening on legs). Duration in problem muscle increased to +29% which was really high, amplitude +60. Again result: no ALS, reinnervation in right leg.
What I have now: Fasciculations in legs most time (small movements in muscles), twitching in other parts of body (hands, back), small vibration in legs in eyes. Problem with sleeping (It is 4 months as I wake up after 3-4 hours of sleep and can not sleep again). I read people with ALS have problem with sleep.
I do not have clinical weakness.
Minor pain in some muscles.
Spasms in legs. Rarely (one in 1-2 days) cramps.
Also my right leg in ancle on 1cm thinner then left.
It is a month as some days I feel numbness on the ends of my fingers.
It is a big problem find good ALS doctor in my city, and most doctors here do not really care. (may be because of my age)
I could believe it is BFS if no changes on emg...
Based on results on EMG doctor does not know what is it.
Can it be early stage of ALS?
Or can you recommend me something?
Thank you for reply.
I am man 29.
My story started a year ago. Something around 01.18
I started to feel strange feeling in upper side of my right feet. It is difficult to describe. Like sock was tight (without sock).
I visited doctor, he recommended me antidepressants, (I took them until Spring without any effect on my feet).
In summer I started feel twitching (fascicuations) in my calf muscle on right leg, then in two weeks in left too then in all body (of course I was nervous about it).
I visited doctor, he found higher symmetrical reflexes on knees and he send me on EMG, which was clear.
In a 1.5 month I felt that was hard to walk. I did not feel clinical weakness, but my right leg become tired much earlier then left. Sometimes I could walk several km, sometimes it tired in 400m. Also I felt liight pain in problem muscle.
I visited doctor again, he send me again on EMG(in a month after first) - in this time it was not full clear, I had fibrillations in problem muscle(in problem leg) amplitude +80%, duration +13%, and no in other muscles on same leg, single fasciculations in some muscles of the body. Result was like: chronic light denervation-reinervation process in right leg, no ALS.
After that in one week on right leg I can not feel that I tired any more, just light feeling.
But I started started feel spasms in legs, rarely convulsions and activity most time on most muscles on my legs.
EMG again(in 2 month after second). In that day I felt better - less twitching. Result: No fibrillations and fasciculation's in any muscles (strange... I can feel it most time and see in morning and evening on legs). Duration in problem muscle increased to +29% which was really high, amplitude +60. Again result: no ALS, reinnervation in right leg.
What I have now: Fasciculations in legs most time (small movements in muscles), twitching in other parts of body (hands, back), small vibration in legs in eyes. Problem with sleeping (It is 4 months as I wake up after 3-4 hours of sleep and can not sleep again). I read people with ALS have problem with sleep.
I do not have clinical weakness.
Minor pain in some muscles.
Spasms in legs. Rarely (one in 1-2 days) cramps.
Also my right leg in ancle on 1cm thinner then left.
It is a month as some days I feel numbness on the ends of my fingers.
It is a big problem find good ALS doctor in my city, and most doctors here do not really care. (may be because of my age)
I could believe it is BFS if no changes on emg...
Based on results on EMG doctor does not know what is it.
Can it be early stage of ALS?
Or can you recommend me something?
Thank you for reply.