Lilacs53
Distinguished member
- Joined
- Oct 13, 2014
- Messages
- 107
- Reason
- PALS
- Diagnosis
- 09/2014
- Country
- US
- State
- AZ
- City
- Buckeye
Hi everyone,
It's been a while since I've checked in. We had computer problems and had stuff going on with our family that we required our full attention, but all of it seems to be taken care of for now.
I hope everyone is doing all right here or as best as can be.
The disease has spread more in my body. It has moved into my limbs and my face, but I still have full use of them, except for my right foot and leg, which I'm still wearing a brace for and using my Walker. However my walking is limited to just a few minutes now because my back doesn't have the strength to hold me up as long anymore, and I have a hard time getting into our van now without the assistance of my husband Gerard. We started a go fund me account to help defray the cost of a conversion van and for other medical equipment. So far we were able to raise enough money for a lift chair and for a new brace, which I really can't wear so some adjustments need to be done to it. We are looking into getting a grant for the conversion van. Have any of you gone this route?
I have also been trying to record my voice on model talker, but so far it's a no go. It calibrates my voice just fine, but for some reason it's not recording the sentences...can't figured it out.
Every day is a struggle, but we are remaining in high spirits and hoping that a cure for ALS will come forth.
Some of you might remember that our oldest son was dating a young lady with huntinton's (SP) disease. They did brake up and it was a mutual decision. They still remain friends however so that is good.
Our daughter has graduated from college and has been accepted to another college to finish her education. She's going to become a professor of political science. We are very proud of her.
While I guess that's enough on me, how are you all doing?
It's been a while since I've checked in. We had computer problems and had stuff going on with our family that we required our full attention, but all of it seems to be taken care of for now.
I hope everyone is doing all right here or as best as can be.
The disease has spread more in my body. It has moved into my limbs and my face, but I still have full use of them, except for my right foot and leg, which I'm still wearing a brace for and using my Walker. However my walking is limited to just a few minutes now because my back doesn't have the strength to hold me up as long anymore, and I have a hard time getting into our van now without the assistance of my husband Gerard. We started a go fund me account to help defray the cost of a conversion van and for other medical equipment. So far we were able to raise enough money for a lift chair and for a new brace, which I really can't wear so some adjustments need to be done to it. We are looking into getting a grant for the conversion van. Have any of you gone this route?
I have also been trying to record my voice on model talker, but so far it's a no go. It calibrates my voice just fine, but for some reason it's not recording the sentences...can't figured it out.
Every day is a struggle, but we are remaining in high spirits and hoping that a cure for ALS will come forth.
Some of you might remember that our oldest son was dating a young lady with huntinton's (SP) disease. They did brake up and it was a mutual decision. They still remain friends however so that is good.
Our daughter has graduated from college and has been accepted to another college to finish her education. She's going to become a professor of political science. We are very proud of her.
While I guess that's enough on me, how are you all doing?