Seanblock
Member
- Joined
- Jan 10, 2015
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OH
- City
- Granville
Hi All-
History:
I have had BFS since I was 22. I have had MANY neuros look at me, and 11 EMGS (I am 38 now). Those emgs mostly were for carpal/cuvidal tunnel, but a few were for my high burden of fascics. I've had them all, from my scalp to tongue to toes and I'm used to them.
Question:
I've developed a non stop, never ending fascic on my left outer arm. One day a few months back I looked down and saw it. It's between my bicep and tricep. It just goes fast and never ending. It's not the normal "pop pop, stop pop" break then repeat of BFS. Should I be any more concerned if a fascic never stops in the same place without weakness in two months? My ALS clinic neuros seem to want to see me every 6 months, they say they have never seen a benign patient with #1 them in the tongue like me, and how many I have. So can this never ending spot be benign like I've always had? I've message my neuro, but would like to get some real world experience. Is truly a twitch a twitch and no way to tell them apart? It was my understand that BFS comes and goes. This does not.
History:
I have had BFS since I was 22. I have had MANY neuros look at me, and 11 EMGS (I am 38 now). Those emgs mostly were for carpal/cuvidal tunnel, but a few were for my high burden of fascics. I've had them all, from my scalp to tongue to toes and I'm used to them.
Question:
I've developed a non stop, never ending fascic on my left outer arm. One day a few months back I looked down and saw it. It's between my bicep and tricep. It just goes fast and never ending. It's not the normal "pop pop, stop pop" break then repeat of BFS. Should I be any more concerned if a fascic never stops in the same place without weakness in two months? My ALS clinic neuros seem to want to see me every 6 months, they say they have never seen a benign patient with #1 them in the tongue like me, and how many I have. So can this never ending spot be benign like I've always had? I've message my neuro, but would like to get some real world experience. Is truly a twitch a twitch and no way to tell them apart? It was my understand that BFS comes and goes. This does not.