Long term ALS survivors

Status
Not open for further replies.

Al

Moderator emeritus
Joined
May 25, 2004
Messages
8,083
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
That's not the same story I'm reading here. I'll go back and reread her posts but I never read about any suicide watch. I have been wrong before. But almost 11 posts per day is overkill. I just asked her to settle down. I didn't think I was mean about it. As for the soap opera as you call it, quite a few are starting to get angry that he won't take the good advice he's being given. Hope you're not going for a few days because you're mad.
AL.

By the way read post #18 this thread and read how optimistic her friend is. So where did you read anything about him being depressed.
 
Last edited:

Lorie

Senior member
Joined
May 17, 2007
Messages
551
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
Not mad at You AL

Not mad at You AL. I always say. I love ya! She E-Mailed me about the suicide. I am glad you picked up on the other I was talking about. Some people think he is playing us innocent people.

I Love Ya AL! :grin:
 

Sandee

Member
Joined
Feb 20, 2008
Messages
24
Reason
Friend was DX
Country
US
State
Indiana
City
New Castle
I'm sorry I bothered a few of you here. My friend was on suicide watch in a local hospital when he FIRST got the diagnosis. You all say he doesn't have ALS. 3 Specialists say otherwise and he was on suicide watch when he was in the hospital, after he accepted the diagnosis he is better and optimistic now. Now the only other thing I want to say is I appreciate my time here but I didn't come here to be picked on I came looking for answers and support so I think another group is what I need.

Sorry again,
Sandee
 

MtPockets

Very helpful member
Joined
Jun 1, 2006
Messages
1,544
Reason
PALS
Diagnosis
05/2006
Country
US
State
Ms
City
Gulfport
Lorie I am glad you are communicating with her by e-mail. Sounds like she needs someone to talk to quite a lot. Which I could understand initially trying to grasp the problem and understand it. Also some people who have never been on a forum of this type may expect an immediate answer to some of their questions, instead of waiting for the group to have a chance to respond. I stand with AL on the kick in the rear. Maybe she just needs to have how this forum works explained to her? :confused:

As for the soap opera case you were speaking of, I get the feeling the whole story is not what is being told. I have even seen times when some people get on forums and start a thread like that one because:
A: They are mental cases who need people to feel sorry for them, all the time.
B: They are bored people pulling our legs to see how far we will jump

How many times do you get advice that tells you how to solve the problem, and yet they continue to tell you their every day activities as like you said they are a soap opera. All that person seems to be doing is getting everyone else depressed and all stirred up about something we really can do nothing about. This is the type I would not be surprised to get a pm or email from asking for money to help them move out.

But, then again it may all be true. Who knows. There are all kinds of people in the world. You and I know what we would do in the same situation, but apparently this person just wants to talk, talk, and talk about it. I would feel better if I saw some action behind all the words.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,556
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
:-DGeez-I go away for a few hours to help my daughter with her broken ankle and come back to find everybody in a tizzy! Gosh you guys know I can't help but add my 2 cents so here goes:

Al-spot on! I'd also told Sandee that anti-anxiety meds do wonders.

Lorie- don't go away. You are our best advocate for the over-anxious.

MT- good point: I bet people new to this sort of thing think they are communicating in real time. I never thought of that.

Sandee- you are a great friend. Oviously this man has made an impression or you would not care so much. He sounds like he has the inner resources to cope, though. If you are trying to find the same sort of strength for yourself, you might be more successful if you focus less on what his illness means to you and more on learning all you can about the disease. the search feature at the top of this screen is a good place to begin.

There. I'm done! 2 cents inserted! BTW Jeff, after you take off that coat with the arms tied behind you, can I borrow it? Hubby says I've needed one for years! :-D
 

givenin

Distinguished member
Joined
Jan 25, 2007
Messages
109
Reason
PALS
Country
CA
State
b.c.
City
salmon arm
Wow the reading is HOT today! Makes my soap opera life seem not so bad with all the family crap. But here is a feel good one to share with all. I have a group of friends who have been sending me a gift each week that I find on my doorstep when I come home from work, they have planned it that way knowing how anxoius I geet before I walk in the door.They started with the first week after Xmas my true friends gave to me, It was a certificate for my favorite coffee. We are now on week 8. The best was when I found a six pack of Rickards Red, beer, after a tuff day at work. Good friends but I can't tell them things or vent like I can here about how things really are so Sandie keep on just take a deep breath and hang in here there is very good advice and help.
 

Lorie

Senior member
Joined
May 17, 2007
Messages
551
Reason
Loved one DX
Country
Uni
State
Alabama
City
Mobile
Capt. Al, AL, Cindy, Jeff, CJ

Capt. Al, AL, Cindy, Jeff, CJ
Sinced I joined this Forum last year. People have joined and gone and passed own.
You mean so much to me. Like another part of my Family. We all have different personalities. We are here to share what we know and learn. You are some of the Nicest, Bravest people I know. I am honered to be here. Not just because of ALS. Because I feel like I know who you are. When Tim was first DX. It took me months just to come to the Forum and read. At first I tried but I just couldn't do it. I was in denial, that this can't be happening to my brother. And then Grief. I then realized I had to get a Grip. Help my brother and get involved with ALS. With your knowledge and patience has helped me in so many ways. I do vent sometimes. My mail objective is to Support, Care and be Compassionate to people. And help with ALS.

I just wanted you to know what you mean to me.

Cindy, AL will have to cut me off before I go away (lol)

Lorie:-D
 

Sandee

Member
Joined
Feb 20, 2008
Messages
24
Reason
Friend was DX
Country
US
State
Indiana
City
New Castle
I will say here too that I do appreciate everyone here so very, very much and yes we all have different personalities and I just happen to be one who wears my heart on my sleeve and can get my feelings hurt very, very easily and I have been hurt, but those who have taken the time to write and email me just means so very much to me and I just want to say thank you all again.

Sandy

p.s. I honestly want all to know that my p.c. was running slow and I really was uncertain as to how the forum was ran as well.
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,556
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
You are welcome, Sandee. All's well that ends welll, as my Grammie used to say. :-D
 

ZenArcher

Senior member
Joined
Feb 22, 2007
Messages
676
Reason
PALS
Diagnosis
02/2007
Country
US
State
PA
City
McEwensville
Cindy if the wife ever let's me out of it, it's all yours :)
 

CindyM

Moderator emeritus
Joined
Sep 17, 2006
Messages
3,556
Reason
Learn about ALS
Country
US
State
New England
City
Anytown
LOL, Jeff. Why do those who know us best think such things? I hope it is not beecause they are in a position to know us at our worst moments!:-D
 

ZenArcher

Senior member
Joined
Feb 22, 2007
Messages
676
Reason
PALS
Diagnosis
02/2007
Country
US
State
PA
City
McEwensville
You know what they say if the straight-jacket....umm....I mean shoe fits..... :)
 

Steve100

Distinguished member
Joined
Oct 5, 2007
Messages
164
Reason
CALS
Diagnosis
10/2007
Country
UK
State
Wales
City
Cardiff
Some people think he is playing us innocent people.




I think so too...glad I'm not being paranoid.
 

olly

Extremely helpful member
Joined
Jan 10, 2008
Messages
2,743
Reason
PALS
Diagnosis
11/2007
Country
uk
State
uk
City
uk
hi al/cindy and all
regarding the person in question,i have emailed alsa for help.
they will email them to arrange home visit,ive asked alsa to email me back so im sure there is corospondance between them and the situation is being sorted. ill let you know when alsa email me.
mpockets,i understand your concern. in uk last week there was a program on it,i cant believe people are so nieve,i am not but give people the benefit of the doubt as a christian i can not sit back and let someone suffer but i know theres only so much i can do as im not well and have my own problems.
best wishes to you all
caroline
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
8,083
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Thank you Caroline for taking the time to care. I hope he really does need help and you are able to help him get it. Please let us know.
AL.
 
Status
Not open for further replies.
Top