alperstein
New member
- Joined
- Apr 30, 2007
- Messages
- 2
- Reason
- PALS
- Diagnosis
- 08/1990
- Country
- Tur
- State
- EGE
- City
- IZMIR
Hi pals,
I am not a frequent poster but somehow I am here again. I Just wanted to let you know that surviving with ALS is really variable. As come to me, I am a Limb onset sporadic ALS patient. Dx at the age of 28 in Hou/Tx - August 1990, no family history, I am an ophthalmologist also (retired), married to Elcin, we have a daughter Ece, my wife is dentist, I used to play classical guitar. I have caregiver (Abla), during daytime 08:00 - 18:00 I can use my Standing powerchair, still speaking and eating. I'm on trach+vent since March 2004 I can type by onscreen keyboard
So far so good
Best wishes to all
Alper
I am not a frequent poster but somehow I am here again. I Just wanted to let you know that surviving with ALS is really variable. As come to me, I am a Limb onset sporadic ALS patient. Dx at the age of 28 in Hou/Tx - August 1990, no family history, I am an ophthalmologist also (retired), married to Elcin, we have a daughter Ece, my wife is dentist, I used to play classical guitar. I have caregiver (Abla), during daytime 08:00 - 18:00 I can use my Standing powerchair, still speaking and eating. I'm on trach+vent since March 2004 I can type by onscreen keyboard
So far so good
Best wishes to all
Alper