Long term ALS survivors

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Hi pals,
I am not a frequent poster but somehow I am here again. I Just wanted to let you know that surviving with ALS is really variable. As come to me, I am a Limb onset sporadic ALS patient. Dx at the age of 28 in Hou/Tx - August 1990, no family history, I am an ophthalmologist also (retired), married to Elcin, we have a daughter Ece, my wife is dentist, I used to play classical guitar. I have caregiver (Abla), during daytime 08:00 - 18:00 I can use my Standing powerchair, still speaking and eating. I'm on trach+vent since March 2004 I can type by onscreen keyboard
So far so good :)
Best wishes to all:)
Alper
 
Alper

You are very inspiring. I have a local friend with ALS for 25 years, on vent for five. He is very uplifting and has just wrote a book on "Living with, Not dying of ALS".

Also my brother has acceeded the Norm. Living span for ALS DX.


I think more post like yours can be very inspiring to other people. Not to give up. I also realize that our own bodies have their process.


Not giving up here!

Lorie
 
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