- Aug 16, 2007
I just wanted to say that in the past 48hrs I have had 2 emails - or rather one email and one pm from PALs who have lived for 14yrs and 16yrs respectively with ALS. One of them isnt even on a vent. I dont want to post names for privacy reasons. If they wanted to come here and tell everyone how well they have done (relatively speaking of course) despite ALS, then they can. But for those of you who are convinced that the 2-5yr prognosis stands true for everyone, well it just doesn't. So chins up people - some of you will live much longer than you think.