monster
Distinguished member
- Joined
- Apr 30, 2011
- Messages
- 126
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- Other
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- Country
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- NJ
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- USA
I've tried adding this to my previous thread "is there anyone like me" but it's been closed.
I have a long history and my emg picked up only fasci in 2011 and 2012, diagnosed with BFS. 2013 emg and clinical was said to be COMPLETELY clean/normal by my third Als specialist. That seems strange since i know I have hyperreflexia, Hoffman, and sometimes a jaw jerk.
My muscles are flabby, lumpy, and 'feel' weak, I have no clinical weakness. Exercising can't produce muscle growth. I've been losing muscles bulk for some time now, slowly. My feelings are, and it's just my opinion, that it's not caused by BFS, but I'm not the one with a advance degree in Als like my doctors. It's just hard for me to believe. I know how I feel.
This past November I showed my hometown neurologist, and all the Als specialist since last year, how my muscle bulk has diminished. My tricep muscles are especially flabby. In his report he called it atrophy. I was surprised. I just had a emg done a few weeks earlier, by the specialist, and it was said to be clean. I realize atrophy can be caused by many things but given my situation and symptoms at a whole, has me concerned.
I always read here if the emg is clean= no ALS.
Does anyone know how many neurons have to die before the emg picks it up? If the atrophy is caused by Als?
I've tested out of everything.
I have a long history and my emg picked up only fasci in 2011 and 2012, diagnosed with BFS. 2013 emg and clinical was said to be COMPLETELY clean/normal by my third Als specialist. That seems strange since i know I have hyperreflexia, Hoffman, and sometimes a jaw jerk.
My muscles are flabby, lumpy, and 'feel' weak, I have no clinical weakness. Exercising can't produce muscle growth. I've been losing muscles bulk for some time now, slowly. My feelings are, and it's just my opinion, that it's not caused by BFS, but I'm not the one with a advance degree in Als like my doctors. It's just hard for me to believe. I know how I feel.
This past November I showed my hometown neurologist, and all the Als specialist since last year, how my muscle bulk has diminished. My tricep muscles are especially flabby. In his report he called it atrophy. I was surprised. I just had a emg done a few weeks earlier, by the specialist, and it was said to be clean. I realize atrophy can be caused by many things but given my situation and symptoms at a whole, has me concerned.
I always read here if the emg is clean= no ALS.
Does anyone know how many neurons have to die before the emg picks it up? If the atrophy is caused by Als?
I've tested out of everything.