Localized Fasciculations In Shoulder

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ChelseaB

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Hello All,

Firstly, just wanted to take a moment to share my appreciation to the board and helpful members here.

I've been under observation for a few years by an MND specialist due to a possible BFS diagnosis, based on two slightly abnormal EMG/reflex studies. This has directionally been going on for about 4 years now.

Typically (for the last few years), I experience widespread fasciculations followed by bouts of perceived weakness in various limbs. To date, I haven't had clinical weakness observed. However, over the past month - the fasciculations have become localized, seemingly for the first time ever. My left shoulder in particular is twitching non-stop day and night, for at least 4 weeks now, to the point where it's causing me issues with sleep.

Therefore, I was wondering if this is cause for concern? Does localized twitching indicate something different than widespread? Can benign fasiculations stay in one area?

What's odd for me, is that I think I may have injured the same shoulder around the time this started. However, I've had injuries since I started seeing my specialist, and it has never resulted in an episode like this.

Anyways, I appreciate anyone's thoughts or guidance around this. Right now, I'm on yearly follow up with the specialty clinic, but I'm scared and wondering if I should try and be seen sooner.

Thank You,
 

ShiftKicker

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Hi Chelsea, here are the previous threads discussing your situation.



This has been going on for a long time now- over 4 years. It must be very stressful to have something unknown affecting your life for that long. If you are under the care of a specialist, particularly one well versed in MND, is there a reason why you are not asking these questions of them? Also, "abnormal" in an EMG result can mean so many things. Specific results are important here, so if you have your most recent report, please feel free to post it (with your identifying details removed).
 

ChelseaB

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Hey Shiftkicker!

Thanks for the prompt reply. To answer your question, I'm seeking advice here since it takes at least 6 months to a year to see the specialist. I'll be honest, the most recent episodes are scaring me quite a bit, and the thought of waiting that long for any answers is daunting.

I can definitely see about finding my most recent report and redacting the details, if that's helpful.
 

affected

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I agree with Fiona totally - contact your doctor and ask your concerns. You probably know that while we sympathise with your situation and fears, twitching without clinical weakness means nothing.
 
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