sdsyd
Distinguished member
- Joined
- May 22, 2008
- Messages
- 329
- Country
- US
- State
- sd
- City
- piedmont
Hi guys. Had f/u with local neuro today and he said he thinks if it were ALS it would be progressing much faster than it is, but these processes are often varied with each individual.
He is hopeful that another set of eyes at the ALS/MDA clinic (next week!) will give us answers and direction. He did see decline in function and strength esp. on my left side , voiced concern...and after evaluating my walking issued me papers for a disability hanger for my car,( we did not ask for this,but welcomed it) which we went to the courthouse and obtained. He remains hopeful and again was very sincere. He did not commit to any diagnosis yet again- which is really ok with me. I am glad he doesn't want to if he doesn't feel comfortable, I actually think its admirable. he also said if the clinic in Colorado couldnt give us a diagnosis, we would watch and begin the process of possibly repeating some tests until whatever "this neurodegnerative process is" declares itself.
Thats all for now. Gotta run and pick up my teenybopper from HS. He broke his wrist snowboarding this weekend (second time on the slopes this season with the best snow pack in a decade- BUMMER!) so we are carpooling, as it is his right arm and he drives a stick. The fun never ends!
Love-
Cindy
He is hopeful that another set of eyes at the ALS/MDA clinic (next week!) will give us answers and direction. He did see decline in function and strength esp. on my left side , voiced concern...and after evaluating my walking issued me papers for a disability hanger for my car,( we did not ask for this,but welcomed it) which we went to the courthouse and obtained. He remains hopeful and again was very sincere. He did not commit to any diagnosis yet again- which is really ok with me. I am glad he doesn't want to if he doesn't feel comfortable, I actually think its admirable. he also said if the clinic in Colorado couldnt give us a diagnosis, we would watch and begin the process of possibly repeating some tests until whatever "this neurodegnerative process is" declares itself.
Thats all for now. Gotta run and pick up my teenybopper from HS. He broke his wrist snowboarding this weekend (second time on the slopes this season with the best snow pack in a decade- BUMMER!) so we are carpooling, as it is his right arm and he drives a stick. The fun never ends!
Love-
Cindy