Hi, I apologize for starting a new thread. I had a thread in February but it has been closed.
My old thread was “flaccid in a week”. Sounds ridiculous but my muscle do go soft very rapidly.
I have been to 3 nuero and a rheumatologist since my last thread. They all agree something is going on but no def answers. They almost seem confused.
The neuros including an als specialist kept saying upper neurons look good. And they are the precious ones?
My question is basic. I understand als starts in one specific spot. And upper neurons control your movements.
1. Does LMND start in one spot? Or does LMND start body wide. I search everywhere and can’t find info.
2. Do lower motor neurons control your movements or just the muscle tension?
I can trigger my muscles but they are weaker and softer. All my joints are cracking due to the soft muscle tissue. This is not in my head, the drs. Noted the symptoms.
But they are not giving me specifics. I have a 3rd emg and more blood work in 2 weeks.
I know I need to trust my drs. But wanted to see if anyone had anything similar. The rheumatologist said what are you doing here, go to a nuero, the neuro said try a rheumatologist.
Thanks!
My old thread was “flaccid in a week”. Sounds ridiculous but my muscle do go soft very rapidly.
I have been to 3 nuero and a rheumatologist since my last thread. They all agree something is going on but no def answers. They almost seem confused.
The neuros including an als specialist kept saying upper neurons look good. And they are the precious ones?
My question is basic. I understand als starts in one specific spot. And upper neurons control your movements.
1. Does LMND start in one spot? Or does LMND start body wide. I search everywhere and can’t find info.
2. Do lower motor neurons control your movements or just the muscle tension?
I can trigger my muscles but they are weaker and softer. All my joints are cracking due to the soft muscle tissue. This is not in my head, the drs. Noted the symptoms.
But they are not giving me specifics. I have a 3rd emg and more blood work in 2 weeks.
I know I need to trust my drs. But wanted to see if anyone had anything similar. The rheumatologist said what are you doing here, go to a nuero, the neuro said try a rheumatologist.
Thanks!