Southerngirl
New member
- Joined
- Jan 19, 2012
- Messages
- 4
- Reason
- Learn about ALS
- Country
- Uni
- State
- AL
- City
- Chandler
Hello friends. I am new to the forums. I've been back and forth a couple times to read other peoples stories. I am in the middle of a bunch of tests but was hoping to get some feedback from people who've been through this before.
Female. 32. Tests for thyroid, lyme disease, b12, vitamin ranges, blood, metabolic, copper, all normal. No sugar problems or diabetic neuropathy. My b6 is a bit high; vit d was low. My total protein level was slightly low.
-I show obvious signs of LMN and UMN.
-Atrophy in right calve. Weakness and wasting in the legs.
-Wasting and sensory loss in glut (but muscles as well).
-General achiness in body, though no visible weakness/wasting in upper body.
-Positive Babinski sign.
-Fatigibility.
-Contain pain in both legs (upper portion).
-Drop foot.
-Cognitively I seem fine.
-Spastic reflex. Hyperreflex on one foot (physical therapist mention).
-Difficulty walking short distances, long distances are impossible. Stairs and ramps are nearly impossible.
-Sensory changes. Can't feel my feet at all. Have weird nerve sensations below the waist. Someone can rub my back and I'd feel sensations in my legs as well. It's just odd.
-Though atrophied when I "work" the muscle I can feel some pain, generally speaking. Legs are so weak it's hard to say for sure. Get weird feelings, pin pricks. Sensations are very odd. Muscles contract at random, though I'm not sure what to say concerning fasciliations. I had them at one time, when it started back in 2008, but I don't noticed any movement now. May just be my ignorance, not sure.
Symtoms are slowly progressive. Walking now is a complete chore, but I'm lucky to still be walking. I do have better and worse days, I call them flares. Though even on better days, not sure that much legs ever work much better.
-Started are a pinpoint pain in right leg in 2006 that radiated outward and moved to other legs.
-2008 brain scan/upper cervical mri came out clear.
-2008 lower mri showed a very small buldge at the L2. Quoting doc: "Mild neuroforaminal naroowing at multiple levels and more noticeable at the L2-L3."
-2008 EMG. Quoting doc: "EMG study showed finding consistent with a right lumbosacral polyradiculopathy with active denervation in the L2 muscles."
-2012 Brain scan/upper cervical MRI. Clean.
Doc has me scheduled for another lower cervical MRI next. Then he said Spinal Tap after that. I was just hoping to get some feedback from someone wiser than myself who's been through this before.
You are all an incredibly brave, inspiring group of people. Thank you.
Female. 32. Tests for thyroid, lyme disease, b12, vitamin ranges, blood, metabolic, copper, all normal. No sugar problems or diabetic neuropathy. My b6 is a bit high; vit d was low. My total protein level was slightly low.
-I show obvious signs of LMN and UMN.
-Atrophy in right calve. Weakness and wasting in the legs.
-Wasting and sensory loss in glut (but muscles as well).
-General achiness in body, though no visible weakness/wasting in upper body.
-Positive Babinski sign.
-Fatigibility.
-Contain pain in both legs (upper portion).
-Drop foot.
-Cognitively I seem fine.
-Spastic reflex. Hyperreflex on one foot (physical therapist mention).
-Difficulty walking short distances, long distances are impossible. Stairs and ramps are nearly impossible.
-Sensory changes. Can't feel my feet at all. Have weird nerve sensations below the waist. Someone can rub my back and I'd feel sensations in my legs as well. It's just odd.
-Though atrophied when I "work" the muscle I can feel some pain, generally speaking. Legs are so weak it's hard to say for sure. Get weird feelings, pin pricks. Sensations are very odd. Muscles contract at random, though I'm not sure what to say concerning fasciliations. I had them at one time, when it started back in 2008, but I don't noticed any movement now. May just be my ignorance, not sure.
Symtoms are slowly progressive. Walking now is a complete chore, but I'm lucky to still be walking. I do have better and worse days, I call them flares. Though even on better days, not sure that much legs ever work much better.
-Started are a pinpoint pain in right leg in 2006 that radiated outward and moved to other legs.
-2008 brain scan/upper cervical mri came out clear.
-2008 lower mri showed a very small buldge at the L2. Quoting doc: "Mild neuroforaminal naroowing at multiple levels and more noticeable at the L2-L3."
-2008 EMG. Quoting doc: "EMG study showed finding consistent with a right lumbosacral polyradiculopathy with active denervation in the L2 muscles."
-2012 Brain scan/upper cervical MRI. Clean.
Doc has me scheduled for another lower cervical MRI next. Then he said Spinal Tap after that. I was just hoping to get some feedback from someone wiser than myself who's been through this before.
You are all an incredibly brave, inspiring group of people. Thank you.