Living with this "ALS THING"

[johnnyd]

Hi Carol

It's nice to hear from you. i have started on my morphine decent. slowly, I might add. just enough to keep me comfortable. I receive it by iv pump with the occasional bolus when needed. i don't know how long I have but I will post until I can't. My wife wants to keep me around as long as I possibly can without any suffering. if I should feel any discomfort. She and my daily check up nurse get orders from my doctor to increase the meds. As long as I am comfortable without pain or breathing discomforts, i am happy to share the time with my family. Or in my own little world on my laptop.

keeping the faith
John

 

[johnnyd]

Henry is on the same ship with me. Rita says it's my choice too. as long as I do what she wants. Hehehe. just today I said no more bi-pap. she said no. I didn't want any food. She said ok. and then pumped ensure through my tube. then I asked for more morphine and she gave me a bolus. 2 minutes later my nurse arrived and I asked her for a bolus she gave one to me. then my daughter walked in and asked her the same. She gave me a shot to. lol. it's like candy. i sucked them in. hehehe. I asked for a higher dose. I have to wait till tomorrow.
how much is Henry on per hour ?

l8r John