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New member
- Joined
- Feb 15, 2007
- Messages
- 8
- Reason
- PALS
- Country
- IN
- State
- Haryana
- City
- Gurgaon
My father got diagnosed with ALS in sept 06 and since then we have consulted almost all the top neurosurgeons and neurophysicians in New Delhi, India (That's where I live) for the same.
He is already on Rilutor since Sept.
His current symptoms are: Right arm and hand completly wasted, Right Leg and Left hand (Partial wasting), speech slurring and a bit of problem in swallowing.
Till now, I was sure that it was ALS and hence we were working towards it.
2 months back, I met another Neurophysician who has confirmed it to me that it is not ALS but Syringomlyelia.
Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage may result in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands.
I am confused between ALS and Syringomyelia now and honestly don't know who to believe. My heart obviously says go with the new doc (cos Syringo is curable and ALS isn't) but going by the facts, all the other docs couldn't be wrong...
Is there anyone out there who has faced similar situation and could help me in suggesting next steps.
In distress...
Gary..
He is already on Rilutor since Sept.
His current symptoms are: Right arm and hand completly wasted, Right Leg and Left hand (Partial wasting), speech slurring and a bit of problem in swallowing.
Till now, I was sure that it was ALS and hence we were working towards it.
2 months back, I met another Neurophysician who has confirmed it to me that it is not ALS but Syringomlyelia.
Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, can expand and elongate over time, destroying the spinal cord. Since the spinal cord connects the brain to nerves in the extremities, this damage may result in pain, weakness, and stiffness in the back, shoulders, arms, or legs. Other symptoms may include headaches and a loss of the ability to feel extremes of hot or cold, especially in the hands.
I am confused between ALS and Syringomyelia now and honestly don't know who to believe. My heart obviously says go with the new doc (cos Syringo is curable and ALS isn't) but going by the facts, all the other docs couldn't be wrong...
Is there anyone out there who has faced similar situation and could help me in suggesting next steps.
In distress...
Gary..