ahibnick
New member
- Joined
- Aug 20, 2006
- Messages
- 1
- Reason
- PALS
- Country
- US
- State
- IL
- City
- Beach Park
Living with a PEG (Feeding Tube)
I have ALS which has affected my speaking and eating. I have scheduled a PEG for next month. I have been putting off as long as I can. I have good days and bad days for eating and drinking. Some days it is hard to just drink water and I choke on it. Other then not being able to speak, I have been able to do most of what I did before. I still am working 40 to 50 hours a week, and work around the house and take care of the yard work.
I am wondering how my everyday life will be different with the feeding tube. Will it cause me be uncomfortable while sleeping? Will I feel the tape and the tube as I walk or on a hot day? How hard is to regulate your intake when you still are able to eat some foods? I am not looking forward to this change, but am looking forward to not having to worry if I am going to able to drink enough fluids.
I have ALS which has affected my speaking and eating. I have scheduled a PEG for next month. I have been putting off as long as I can. I have good days and bad days for eating and drinking. Some days it is hard to just drink water and I choke on it. Other then not being able to speak, I have been able to do most of what I did before. I still am working 40 to 50 hours a week, and work around the house and take care of the yard work.
I am wondering how my everyday life will be different with the feeding tube. Will it cause me be uncomfortable while sleeping? Will I feel the tape and the tube as I walk or on a hot day? How hard is to regulate your intake when you still are able to eat some foods? I am not looking forward to this change, but am looking forward to not having to worry if I am going to able to drink enough fluids.