MarciaA
Distinguished member
- Joined
- Mar 13, 2006
- Messages
- 118
- Reason
- PALS
- Country
- US
- State
- MN
- City
- Owatonna
Hello all!
I was visiting my sister last weekend. We installed hand rails on both sides of her stairway leading to the 2nd floor. In the past couple months since her diagnosis, we've talked a little bit about what she's going through, but nothing real "meaty".
Last weekend, though, she started opening up to me more and I sang your praises. I even took her to this website so that she could see just how helpful the dialog here can be! Anyway, we talked about living wills. She has so many questions that I simply can not answer, so I'm turning to you guys. Do any of you out there have living wills? My sister doesn't know what to put in hers because she doesn't know how far she wants to go. A couple of her friends (non PALS) shared what was in their living wills, but they just don't apply to someone with ALS.
Also, she seems very afraid of the day that she will lose the ability to speak. What sorts of things are out there that you all have tried in terms of multiple/alternate forms of communication?
I look forward to "hearing" from you guys! I've been home on "spring break" for the last few days. Today it's raining and dreary...although it's helping to get rid of the snow!
Marcia
I was visiting my sister last weekend. We installed hand rails on both sides of her stairway leading to the 2nd floor. In the past couple months since her diagnosis, we've talked a little bit about what she's going through, but nothing real "meaty".
Last weekend, though, she started opening up to me more and I sang your praises. I even took her to this website so that she could see just how helpful the dialog here can be! Anyway, we talked about living wills. She has so many questions that I simply can not answer, so I'm turning to you guys. Do any of you out there have living wills? My sister doesn't know what to put in hers because she doesn't know how far she wants to go. A couple of her friends (non PALS) shared what was in their living wills, but they just don't apply to someone with ALS.
Also, she seems very afraid of the day that she will lose the ability to speak. What sorts of things are out there that you all have tried in terms of multiple/alternate forms of communication?
I look forward to "hearing" from you guys! I've been home on "spring break" for the last few days. Today it's raining and dreary...although it's helping to get rid of the snow!
Marcia