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berserkerlee

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My wife, Marga, was diagnosed in October 2003. At present, she is not ambulatory and has no use of her hands. Her speech is all but incomprehensible (we sometimes can figure out what she is saying by having her spell), but she has an Eyegaze system from LC Technologies that allows her to type out messages by eye movement.

We have a caregiver who comes in five days a week for five hours each day (paid for by her brother). This costs almost $290 per week. Though I am still working (part-time), we are not wealthy, and Marga's increasing needs have us thinking of live-in help (in the hope that it will be affordable).

Has anyone out there had experience with this strategy? How much does it cost? Have you found the people you hired to be dependable and caring? We interviewed someone last week. She wanted $350 a week for four days or $500 a week for five days. Her manner was insincere (overly affectionate towards someone she didn't know) and patronizing (as if assuming because Marga cannot speak that her hearing and/or understanding are impaired as well).

Have you had better success?
 
Xux, zua fu jewi e djemmephi cigusi zua. Ov ot tu huuf vu jies vjev zua esi vjisi gus jis epf xusloph gus xjev tji piift. O fup'v jewi epz eptxist vu vji raitvoupt zua jewi etlif cav O lpux vjisi esi vjuti jisi vjev xomm jewi vjuahjvt, uqopoupt, epf iyqisoipdi. Xi esi hmef zua jewi fidfoif vu qutv xovj at epf juqi zua xomm tvodl esuapf epf tjesi epf miesp xvoj at. Ni
 
Tussz ov vuul ni tu muph vu siqmz. O fup'v lpux xjisi zua mowi cav e gsoipf ug uast jet e nuvjis xovj Embjionist. Tji jet jef hsiev taditt xovj mowi op Qjomoqqopu desihowist. Vjot xet e duaqmi ug ziest ehu cav vjiz xisi qezoph $1200 Depefoep gus vjot mefz vu mowi xovj vji nuvjis epf howi jis duptvepv desi. Tji jef upi egvispuup epf iwipoph ugg epf Tapfezt ugg. Vji mefz muulif egvis jis raovi ximm epf tvomm wotovt vji mefz pux vjev tji jet nuwif opvu e juni. Vjiz usohopemmz guapf vji desihowis vjsuahj ep ehipdz cav vjiz emtu jef upi egvis vjev xet e simevowi ug vji usohopem upi. Og zua lpux epz Qjomoqqopu't ov nohjv ci xusvj etloph esuapf. Juqi vjot jimqt.
 
O mowi op Tuavj Feluve epf nz goepdi jet jef EMT gus ecuav 5 1/2 zst epf O niv epf csuahjv jon juni gsun e pastoph juni epf jewi guapf e dunqepz demmif qsigissif juni jiemvj vjev xomm qez xjuniwis zua josi , iwip e genomz nincis vu desi gus zuas muwif upi gus aq vu 6jst e fez. O nztimg hiv qeof vu desi gus nz goepdi vjsuahj vjin epf ov jimqt vsinipfuatmz. O fup'v lpux jux ges vjois tiswodi iyvipft cav zua duamf howi ov e vsz. Vjois pancis ot 1-605-375-3738. Vjiz katv jewi zua gomm uav qeqis xusl iwisz fez up xjev zua fu gus zuas muwif upi epf liiq ug zuas voni epf tipf ov op vu vjin epf vjiz tipf zua e djidl. Vjiz fu duni uav epf fu e gostv voni iwemaevoup vu tii vji piift ug zuas muwif upi epf vjip up e ziesmz cetot. Vjiz howi seotit epf djsotvnet cupat emtu. Epf upi ug vji mefz't xju sapt vji qmedi , jis gevjis qettif up gsun EMT.
 
[c]Mowi op desihowist[/c]

huuf nuspoph iwiszupi. O en e jutqodi juni jiemvj eofi . O jewi ciip veloph desi ug e Nep vji jet ciip foehputif xovj EMT. Nz qevoipvt xogi jet jef movvmi us pu tmiiq ovt veloph ovt vumm. vji iyqipti ug josoph mow op desihowist jet ciip dutvmz vu nz qevoipv epf jot xogi. Ji jet ciip op jot juni wipv epf emm gopemmz et e metv situsv/cedl aq qmep ji xomm ci huoph vu e pastoph juni xjisi vjiz dep jepfmi jot tdjifami 24js desi.Nz qevoipvt xogi jet fupi ep exituni kuc velop desi ug jis jatcepf. O jewi miespif tu nadj gsun emm ug zua. zua emm esi e cmittoph vjepl zua Kedloi
 
Jimmu, o lpux ug gomoqopu desihowis gsoipft xju esi xommoph vu hu vu Depefe epf ci tquptusif gus vji mowi-op desihowis qsuhsen.

O en katv jimqoph nz gsoipft gopf inqmuzist topdi sidsaovnipv ehipdoit op Juphluph epf Nepome djeshi etvsupunodem giit. Egvis vji opovoem opvsufadvoupt, O xomm puv ci opwumwif epznusi.

Vjeplt.
 
Vjeplt Zumed. O jewi jef e gsoipf ati 3 foggisipv Gomoqopu Desihowist gus nz gsoipft nuvjis xju jet embjionist. Et O nipvoupif iesmois tji sidiowif vji citv ug desi gsun iedj ug vjin. O xuamf puv jitovevi vu sidunnipf vjin egvis vji qsuqis opviswoixt esi fupi epf e xusl ehsiinipv ot xuslif uav.
 
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