whimsy_1971
Active member
- Joined
- Jan 13, 2008
- Messages
- 78
- Country
- US
- State
- Illinois
- City
- Noble
Dave was put in the hospital last monday and we just returned home today on my request.
He was having difficulty breathing and it was alot more than normal. He was having very short breaths and girgling in his throat. I was suctioning him like crazy and he had so much anxiety.
They finally go him comfortable. After 7 days of staying in the hospital and being very discouraged and totally blown away by how little help there was there. I finally had enough. We had been there and the only thing they did was give him his meds and feed him. I said I can do this at home. I couldnt even leave the room to go get something to eat, 1/2 the nurses couldnt even suction him, I had too or they said they could call in respatory. Hello he could choke by then. I had to ask for help to clean his bottom daily. (he has 3 bed sores now on his bottom) I asked the Dr if we could would be able to go home on the Morphine drip, and he said ya. So I said great lets go. I then told Dave that we can always come back if he has more difficulty and the Dr said well he will.
I went down to talk with the dr and asked it I was making the wrong decision and he said he thought it was ok, but that it was only a matter of time and that we are just waiting for an infection to set in and that he felt that if one did we should not do anything for him but make him comfortable so that he doesnt have to suffer any longer.
I just dont know what to think of this. I told him I wasnt sure where we were at on his progression. I know its not good, but what the heck.
anyway we are home on hospice again. He is much more comfortable then last time, he is on a morphine pump and adavane along with other meds but he is comfortable now.
Just a little update.
I want to thank all of you for your support and help.
He was having difficulty breathing and it was alot more than normal. He was having very short breaths and girgling in his throat. I was suctioning him like crazy and he had so much anxiety.
They finally go him comfortable. After 7 days of staying in the hospital and being very discouraged and totally blown away by how little help there was there. I finally had enough. We had been there and the only thing they did was give him his meds and feed him. I said I can do this at home. I couldnt even leave the room to go get something to eat, 1/2 the nurses couldnt even suction him, I had too or they said they could call in respatory. Hello he could choke by then. I had to ask for help to clean his bottom daily. (he has 3 bed sores now on his bottom) I asked the Dr if we could would be able to go home on the Morphine drip, and he said ya. So I said great lets go. I then told Dave that we can always come back if he has more difficulty and the Dr said well he will.
I went down to talk with the dr and asked it I was making the wrong decision and he said he thought it was ok, but that it was only a matter of time and that we are just waiting for an infection to set in and that he felt that if one did we should not do anything for him but make him comfortable so that he doesnt have to suffer any longer.
I just dont know what to think of this. I told him I wasnt sure where we were at on his progression. I know its not good, but what the heck.
anyway we are home on hospice again. He is much more comfortable then last time, he is on a morphine pump and adavane along with other meds but he is comfortable now.
Just a little update.
I want to thank all of you for your support and help.