mrsharris
New member
- Joined
- Apr 24, 2018
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 05/2017
- Country
- IR
- State
- NY
- City
- Dublin
My dad was diagnosed with ALS a year ago, he has respiratory onset.
Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he likes he can still speak clearly and although he is weak he enjoys going out for a spin in his wheelchair and socialising with friends and family.
Ever since i can remember my Dad has always tapped his hands a couple of times on objects like a table or arms of a chair or inexplicably pick up and set down objects a few times just a little habit he had it wasn't very noticeable only to those close to him and i dont think he was ever aware of it.
I have noticed that this little habit has become more frequent recently (possibly with the anxiety of the illness) and im wondering if there is any link? has anyone else noticed this with their PA LS
Although he uses a NIPPV up to 20 hours a day and needs a motorised wheelchair for anything longer than a few steps he's actually doing ok considering the prognosis last year, a year later he still can eat and drink what he likes he can still speak clearly and although he is weak he enjoys going out for a spin in his wheelchair and socialising with friends and family.
Ever since i can remember my Dad has always tapped his hands a couple of times on objects like a table or arms of a chair or inexplicably pick up and set down objects a few times just a little habit he had it wasn't very noticeable only to those close to him and i dont think he was ever aware of it.
I have noticed that this little habit has become more frequent recently (possibly with the anxiety of the illness) and im wondering if there is any link? has anyone else noticed this with their PA LS
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