limegreenphysicist
Distinguished member
- Joined
- Feb 19, 2010
- Messages
- 228
- Country
- US
- State
- Alabama
- City
- Auburn
Hey you guys,
Sorry for being a stranger lately. School and life is just so crazy right now. I wanted to come and update my story for those that have been there supporting me and following me through all of this.
I had my another check in with my doctor yesterday to test my strength, reflexes, and atrophy..blah blah..you know how it goes.
So my strength is still 5/5 all around. My Romberg is now absent which is a switch from falling over to the right at the ALS Clinic in April. My reflexes have gone down in my legs but are still quite brisk in my arms. Still no clonus, hoffmans, babinskis..nada...he jerked on my ankles for awhile of which I had to remind him that I was still in a quite a bit of pain.
He also noted no new atrophy or thinning. My tongue looks quite good, no twitching, and my speech is pretty good. A little choppy and slow every now and then but most days I rattle off. so I was happy with my visit and he noted significant improvement from the last time he saw me in his notes to my doctors in Atlanta.
They ran a battery of new tests one to check for vasculitis bc of the livido reticulitis they found in my legs. They also ran my new Western Blot for Lymes along with a CD57 to see how the treatment is fairing against George.
If the WB comes back negative of which he doesnt think it will, then I dont have to go back on Rocephin and they will just continue treating the multiplex. I think I am ok with that.
I have been walking all over campus, I played my first game of volleyball this week and played another game yesterday and went out dancing last night. I feel so much better. The twitching is almost non existent.
I am hoping things continue on in this way. My followup EMG is in Sept. and I'm hoping that the multiplex will have improved. I feel as though if it were going to get worse I would definitely not be 5/5 after 5 months.
Oh and I dont have to use my mouth guard anymore at all. And I am no longer clumsey and dropping everything.
My only residual is my speech and extreme back pain. Feels like sciatic pain.
I hope everyone is doing well and I have been surprised by how positive thinking has really helped me get back to me.
I see you guys have had your hands full with all the new crazies. I love you all and I miss you all terribly.
Love,
Kelly Belly
Sorry for being a stranger lately. School and life is just so crazy right now. I wanted to come and update my story for those that have been there supporting me and following me through all of this.
I had my another check in with my doctor yesterday to test my strength, reflexes, and atrophy..blah blah..you know how it goes.
So my strength is still 5/5 all around. My Romberg is now absent which is a switch from falling over to the right at the ALS Clinic in April. My reflexes have gone down in my legs but are still quite brisk in my arms. Still no clonus, hoffmans, babinskis..nada...he jerked on my ankles for awhile of which I had to remind him that I was still in a quite a bit of pain.
He also noted no new atrophy or thinning. My tongue looks quite good, no twitching, and my speech is pretty good. A little choppy and slow every now and then but most days I rattle off. so I was happy with my visit and he noted significant improvement from the last time he saw me in his notes to my doctors in Atlanta.
They ran a battery of new tests one to check for vasculitis bc of the livido reticulitis they found in my legs. They also ran my new Western Blot for Lymes along with a CD57 to see how the treatment is fairing against George.
If the WB comes back negative of which he doesnt think it will, then I dont have to go back on Rocephin and they will just continue treating the multiplex. I think I am ok with that.
I have been walking all over campus, I played my first game of volleyball this week and played another game yesterday and went out dancing last night. I feel so much better. The twitching is almost non existent.
I am hoping things continue on in this way. My followup EMG is in Sept. and I'm hoping that the multiplex will have improved. I feel as though if it were going to get worse I would definitely not be 5/5 after 5 months.
Oh and I dont have to use my mouth guard anymore at all. And I am no longer clumsey and dropping everything.
My only residual is my speech and extreme back pain. Feels like sciatic pain.
I hope everyone is doing well and I have been surprised by how positive thinking has really helped me get back to me.
I see you guys have had your hands full with all the new crazies. I love you all and I miss you all terribly.
Love,
Kelly Belly