- Apr 14, 2019
Hello, universe. I’m a woman in my 30s currently living abroad with my wife in her 40s, who has become a pALS after being diagnosed in January this year. Since then we’ve moved through canes, walkers, manual wheelchairs of varying degrees to an electric chair. Also the associated shower, toilet and other paraphernalia. We’ve also moved out of our house which had stairs, into temporary accommodation and now an apartment. Just this week we’ve also been schooled on ventilation, which is also now required (Trilogy). In only 6 months this has gone from being a minor irritant to a whole project of its own. I’ve managed to cope with all sorts of mobility adaptations but confess to being entirely overwhelmed by the idea of being responsible for assistance with ventilation. How do CALS manage to adapt over and over and over again? Any tips?!