Life is a Voyage

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quadbliss

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The human lifetime is a voyage at sea. You may not have control over the ship’s itinerary, but you decide how to spend your days. You can view the foreign lands from the rail of the ship, or disembark and explore the various ports of call. You can even confine yourself to the familiar, yet constricting four walls of your cabin. The choice is yours. Your passage is paid.

Mike
 

Al

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Yes but some days I think I'm on the Titanic. Not all days but every once in a while the boat seems leaky. AL.
 

CindyM

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We hear you. Al. Please don't forget that there are a lot of us in that same boat with you! [hug]
 

musicsmiles

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Ouch!

Hi,
Talk about hitting the nail on the head! Even as a caregiver to my husband, who has ALS, I feel I am on that ship with you all. He has really good days.....when the waves are calm. Then yesterday...Oh my! he was exhausted and really feeling awful, from not sleeping the night before, the waves were high and mighty.
He was diagnoised with the bulbar onset...and each month I see the disease is moving more progressively through his body...harder for him to swallow, his speech getting worst, and oh, help us the sleepless nights.

Musicsmiles
 

John1

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I like your Titanic metaphor, Al. The only thing wrong with it is that the Titanic sank on a calm night and most PALS find the trip pretty stormy. Another problem with the all-expense paid cruise that we're all supposed to be enjoying is that most of the ports-of-call are not wheelchair accessible.
 

ellisa

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Well some days I feel like I am floating in the ships dingy, awaiting rescue.

Ellisa
 

Al

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That's true John but the Titanic was the most famous boat that I thought the Americans would recognize. LOL. ALS is like the iceberg. Cold, dark, formidible, and mysterious. And a sneaky killer. AL.
 

liz

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I think this thread was supposed to be positive but turned depressing pretty quick. Are you Canadians getting cabin fever up there? It is that time of year.

Liz
 

John1

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liz said:
I think this thread was supposed to be positive but turned depressing pretty quick. Are you Canadians getting cabin fever up there? It is that time of year.

Liz
Liz,
I don't think it is the weather but more that not many people related to the metaphor of having ALS being an all-expense paid cruise on the good ship Lollipop.
 

liz

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John,

I hear where you're coming from. I'm not quite "on board" with the ALS is bliss thing myself but you guys usually sound a little more upbeat.

Liz
 

Al

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Hey! We're upbeat up here. Some snow on the ground. Not enough to ski on though. Cold as heck and sunny. Crisp clear winter day. Doesn't get much better than that. Except of course if you are someplace warm and sunny with a frozen Margarita by your side. AL
 

vantec

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musicsmiles said:
Hi,
Talk about hitting the nail on the head! Even as a caregiver to my husband, who has ALS, I feel I am on that ship with you all. He has really good days.....when the waves are calm. Then yesterday...Oh my! he was exhausted and really feeling awful, from not sleeping the night before, the waves were high and mighty.
He was diagnoised with the bulbar onset...and each month I see the disease is moving more progressively through his body...harder for him to swallow, his speech getting worst, and oh, help us the sleepless nights.

Musicsmiles
I finally found the combination of medications that will let your husband sleep. I have ALS, and had many nights where I could not sleep the whole night, up for more than 36 hours.

One tablet Soma 325mg, one tablet 2mg Xanax, two tablets 100mg Trazodone. I can get up to six hours of sleep, with these medications.

I hope it will help him.

Conrad
 

Barbie4

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What if?

I love Quadbliss, this person mentally has found a way to find peace within and learn to accept and enjoy what they have. I have no idea how they do it, with such a disease, but I wish I knew the secret.
As a caregiver and friend, how can I help my loved one find that peace.?How can I comfort a mother losing the ability, very quickly, of parenting her own 3 children.? How do I help the husband who is unbelievabley amazing and burning the candle at both ends to keep up.? How do I comfort the Mother of the woman dying from ALS and the inlaws who are suffering and doing their best to help, to find this "bliss", How do I find the "bliss" myself.?
Quad bliss, I envy you. I wish my pals could feel your serenity. I wish her children could feel your serenity and comfort. But what I really wish is that I could close my eyes and this whole nightmare, would go away and we would be back to last Christmas 2005 and Gail and I would be kareokeing "paradise by the dash board light" on her daughters 'Barbie" machine and we wouldn't have a care in the world.

Barbie4
 

BWk

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Weather

Al, Hey it's even been cold as heck way down here in so. N.M. 31 for a high here today and in Angel Fire in no. N.M. it was 31 below zero last night! not our usual weather, though.
 

Al

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That is cold for down there. Hope you have a furnace in your place. Stay warm. AL.
 
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