Levosimendan

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lgelb

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Joined
Nov 5, 2009
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7,523
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Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
In Phase 2, it failed to show significant seated position SVC improvement but did hit the mark for lying down (supine) measurement. Of course no way to know yet if that delays BiPAP or death, or affects quality of life.

Since it acts directly on the heart, it will not be appropriate for all (I wouldn't meet the criteria myself). But if your BP is pretty stable and you meet all the other criteria, worth a look.
 

Clamdigger

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Joined
Jun 20, 2017
Messages
43
Reason
PALS
Diagnosis
05/2017
Country
US
State
MD
Surprisingly, besides the ALS, I'm basically healthy.

I do have a family history of heart disease though. I guess I'll do all the research and then flip a coin.
 
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