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mkwong

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Have anyone heard of the Leonard Florence Center-ALS Residence?
I read about it and was excited to go give them a visit and report back to my local ALSA chapter.
I contacted their admissions director and tried to arrange a visit. She asked me to submit an admissions application, which I did. But then something strange happened. They cancelled my visit and told me it is because I use a ventilator and that they don't yet support that. An ALS residence with no vent support in 2011? Strange.
Anyone have experience with them?
 

brooksea

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It's brand new and in the making. Perhaps they don't have the tech and care yet. I'm pretty sure it will happen!

Have you contacted Steve Saling?
 

mkwong

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Perhaps. But they do claim that the 10 spots are taken. I wonder if they actually have 10 PALS who don't need ventillators but want to live there, away from home.
Maybe they just don't want me because they don't think I can afford it based on what I put on the application. My goal was actually to understand what they provided for PALS and let others at the clinic I go to know about what is available.
I have not contacted Steve. I don't have his contact information and figure he has his hands full with all the great things he's doing.
 
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