Ness253
Member
- Joined
- Jun 3, 2022
- Messages
- 16
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- WA
Hi,
First I would like to apologize if I come off as insensitive to anyone here on this forum. not my intention.
I want to start by saying I feel like I hid from these issues for 6 years or so by drinking a lot over the years. Mainly weekend binge drinking.
First Symptom - Left Arm Weakness whole body fatigued
So I noticed about 5-6 years ago, my left wrist/hand would periodically get weak. playing computer games. shrugged it off. when I drank beer the weakness would either be less noticeable or went away. As of now, if I fully extend this arm and try to do something, its incredibly hard. I can do it, it just my hand shakes and gets weak. I dont believe this has traveled up my arm. it has kind of stayed isolated.
Second Symptom - Both Legs Weak upon Engaging (Feel Wobbly) (noticed about 2 years ago)
Fast forward a couple years. my legs seem to be weak everyday when I engage them. getting up from a chair, just plain fatigued. Upon Engaging them walking for a bit, they feel better. I work in an office, anytime I bend over, or crouch down, my legs feel weak and almost have like a tickling feeling. its hard to describe. its almost like butterflies your stomach but in your legs. Again, I can still do these things, but makes it incredibly hard when I have this weakness/butterfly feeling.
Other Examples of what's going on
Another example, I took my kid to the fair about 9 months ago. My son who is 4 wants to go down the huge slide, so I put him on my lap and held him super tight to make sure that he does not fall and hurt himself. After we went down the slide, 10 seconds, I immediately go into this like shock feeling where my body feels like its shaking, but its not. the butterfly feeling lasts for like 10 minutes. It was almost like an electrical current i could feel all the way up to like my neck.
Last Example, same scenario but on a kiddy rollercoaster. I was holding my kid making sure he didn't hurt himself. Same thing happened. my body completely shut down.
Concerns
The obvious concern is I have some sort of progressing illness happening in my body. My PCP chalks it off as i am out of shape. I am convinced something is going on.
I will say that I was a binge drinker for 10 years. I hid from this problem for 6 years with drinking. Always kinda chalked it up to just having alcohol withdrawals. but now I've not touched a drop in 2 months, still the same issues of fatigue.
I have not been diagnosed, have not shown signs of clinical weakness, atrophy etc.
You guys have any ideas?
Thanks,
First I would like to apologize if I come off as insensitive to anyone here on this forum. not my intention.
I want to start by saying I feel like I hid from these issues for 6 years or so by drinking a lot over the years. Mainly weekend binge drinking.
First Symptom - Left Arm Weakness whole body fatigued
So I noticed about 5-6 years ago, my left wrist/hand would periodically get weak. playing computer games. shrugged it off. when I drank beer the weakness would either be less noticeable or went away. As of now, if I fully extend this arm and try to do something, its incredibly hard. I can do it, it just my hand shakes and gets weak. I dont believe this has traveled up my arm. it has kind of stayed isolated.
Second Symptom - Both Legs Weak upon Engaging (Feel Wobbly) (noticed about 2 years ago)
Fast forward a couple years. my legs seem to be weak everyday when I engage them. getting up from a chair, just plain fatigued. Upon Engaging them walking for a bit, they feel better. I work in an office, anytime I bend over, or crouch down, my legs feel weak and almost have like a tickling feeling. its hard to describe. its almost like butterflies your stomach but in your legs. Again, I can still do these things, but makes it incredibly hard when I have this weakness/butterfly feeling.
Other Examples of what's going on
Another example, I took my kid to the fair about 9 months ago. My son who is 4 wants to go down the huge slide, so I put him on my lap and held him super tight to make sure that he does not fall and hurt himself. After we went down the slide, 10 seconds, I immediately go into this like shock feeling where my body feels like its shaking, but its not. the butterfly feeling lasts for like 10 minutes. It was almost like an electrical current i could feel all the way up to like my neck.
Last Example, same scenario but on a kiddy rollercoaster. I was holding my kid making sure he didn't hurt himself. Same thing happened. my body completely shut down.
Concerns
The obvious concern is I have some sort of progressing illness happening in my body. My PCP chalks it off as i am out of shape. I am convinced something is going on.
I will say that I was a binge drinker for 10 years. I hid from this problem for 6 years with drinking. Always kinda chalked it up to just having alcohol withdrawals. but now I've not touched a drop in 2 months, still the same issues of fatigue.
I have not been diagnosed, have not shown signs of clinical weakness, atrophy etc.
You guys have any ideas?
Thanks,