Gsexxvi26
New member
- Joined
- Dec 22, 2020
- Messages
- 3
- Reason
- Other
- Diagnosis
- 00/0000
- Country
- US
- State
- FL
- City
- Orlando
Hello,
I wanted to start off by saying that I am a 22yr old male so I know my chances for als are relatively rare.
About 1.5 years ago I started with a random twitch in my left arm that ended up spreading throughout my entire body. I have pretty bad health anxiety so I threw myself down the rabbit hole of googling symptoms and became worried of ALS. I went to a neurologist about 3-4 months into twitching and did a emg which came back clean and was given a diagnosis of BFS.
Interestingly enough this put me at ease and my twitching stayed however I feel like they were way less than when I first got them.
it has now been a lil over a year and I’m getting some new symptoms on top of the twitching that are causing concern. For one when running I seem to get exercise intolerance and my leg muscles get really stiff and heavy however I don’t fall or trip. What really has started to worry me is that for about 1 week now my left thigh has felt weak. I understand what perceived weakness is and I’m trying to tell myself that it’s just perceived. However I feel that it is really awkward to walk on this left leg, I’ve had perceived weakness before although I remember having the feeling in both legs not just one. The feeling of weakness stays even when I’m laying down it’s like I can feel that the thigh is weaker without even moving it. It even sometimes feels tingly/ticklish on the inside not sure how to describe it. Sometimes it feels like the muscle is twitching internally. I’ve had perceived weakness before and it usually goes away when my mind is focused on something else like (work) however I’ve worked this past week and just can’t shake the awkwardness/weakness in my thigh that I feel. My butt muscles also feel sore which I am wondering if it’s because they are making up for the weakness and are working harder because of it. It’s really this new symptom alone that’s brought me here as I’ve never had this problem before and it’s been 1.5 years already.
it’s only been a week with this new symptom and I’ve made another appointment for a emg with my neuro, but I am worried. Is it possible to twitch for over a year and then finally the weakness sets in. I’ve heard conflicting views about weakness coming first and then twitching. I find it odd bc the twitching started in my left arm originally. I’ve had a panic attack already this week and I know my anxiety is high but I would say it’s high bc of the appearance of this new symptom. I forgot to mention I still have twitching everywhere but it feels more focused in my left thigh where the weakness is.
Does this at all sound like maybe a slow progressing ALS?
I wanted to start off by saying that I am a 22yr old male so I know my chances for als are relatively rare.
About 1.5 years ago I started with a random twitch in my left arm that ended up spreading throughout my entire body. I have pretty bad health anxiety so I threw myself down the rabbit hole of googling symptoms and became worried of ALS. I went to a neurologist about 3-4 months into twitching and did a emg which came back clean and was given a diagnosis of BFS.
Interestingly enough this put me at ease and my twitching stayed however I feel like they were way less than when I first got them.
it has now been a lil over a year and I’m getting some new symptoms on top of the twitching that are causing concern. For one when running I seem to get exercise intolerance and my leg muscles get really stiff and heavy however I don’t fall or trip. What really has started to worry me is that for about 1 week now my left thigh has felt weak. I understand what perceived weakness is and I’m trying to tell myself that it’s just perceived. However I feel that it is really awkward to walk on this left leg, I’ve had perceived weakness before although I remember having the feeling in both legs not just one. The feeling of weakness stays even when I’m laying down it’s like I can feel that the thigh is weaker without even moving it. It even sometimes feels tingly/ticklish on the inside not sure how to describe it. Sometimes it feels like the muscle is twitching internally. I’ve had perceived weakness before and it usually goes away when my mind is focused on something else like (work) however I’ve worked this past week and just can’t shake the awkwardness/weakness in my thigh that I feel. My butt muscles also feel sore which I am wondering if it’s because they are making up for the weakness and are working harder because of it. It’s really this new symptom alone that’s brought me here as I’ve never had this problem before and it’s been 1.5 years already.
it’s only been a week with this new symptom and I’ve made another appointment for a emg with my neuro, but I am worried. Is it possible to twitch for over a year and then finally the weakness sets in. I’ve heard conflicting views about weakness coming first and then twitching. I find it odd bc the twitching started in my left arm originally. I’ve had a panic attack already this week and I know my anxiety is high but I would say it’s high bc of the appearance of this new symptom. I forgot to mention I still have twitching everywhere but it feels more focused in my left thigh where the weakness is.
Does this at all sound like maybe a slow progressing ALS?