marslan
New member
- Joined
- Apr 8, 2021
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 10/2019
- Country
- US
- State
- IL
Hi!
My dad has ALS and he is approaching the complete locked-in phase with very little motion left in his body. He has been using a simple button-press alarm which we place under his hand to call us into his room or alert us to his needs, but lately he has lost the ability to press the button, which is causing him a lot of stress. He is using the eye tracking system on his computer to communicate with us, but he still needs to let us know when he wants the computer on and over his face. His ventilator is programmed to beep and alert us if he is not breathing properly, so that is not an issue. Nevertheless, he doesn't feel safe/comfortable without having an alarm system he can control.
Do you have any recommendations for some sort of an extremely sensitive touch alarm or some sensor system that we can use? Maybe something we can place next to his head (he can still move his neck left-right) or something we can stick to his cheeks to detect the movement on his face? I am not sure what options are out there for this late stage.
Looking for recommendations. Thanks!
My dad has ALS and he is approaching the complete locked-in phase with very little motion left in his body. He has been using a simple button-press alarm which we place under his hand to call us into his room or alert us to his needs, but lately he has lost the ability to press the button, which is causing him a lot of stress. He is using the eye tracking system on his computer to communicate with us, but he still needs to let us know when he wants the computer on and over his face. His ventilator is programmed to beep and alert us if he is not breathing properly, so that is not an issue. Nevertheless, he doesn't feel safe/comfortable without having an alarm system he can control.
Do you have any recommendations for some sort of an extremely sensitive touch alarm or some sensor system that we can use? Maybe something we can place next to his head (he can still move his neck left-right) or something we can stick to his cheeks to detect the movement on his face? I am not sure what options are out there for this late stage.
Looking for recommendations. Thanks!