Doug Frazier
New member
- Joined
- May 30, 2023
- Messages
- 7
- Reason
- PALS
- Diagnosis
- 11/2021
- Country
- US
- State
- FL
- City
- Sarasota
I searched the forums and couldn’t find any posts on this topic that weren't very old.
I am a 65 year old PALS. My wife and caregiver is also 65.
The good news is I was fortunate enough to get it when I was older. The bad news is we are both older and therefore the workload on my wife is my primary concern.
I am considering getting a laryngectomy. But I am concerned about the work required for my wife.
The information from my doctor and online lead me to think it is not too much work, but I would like to hear from PALS that have had one or caregivers for someone who did.
Did you find that it required the intense 24/7 care like a trach does?
How many suctionings a day were required?
Were night suctions a regular occurrence?
Pros and cons in general?
If you had to decide again now would you do it again?
I appreciate any information.
Thanks
Doug
I am a 65 year old PALS. My wife and caregiver is also 65.
The good news is I was fortunate enough to get it when I was older. The bad news is we are both older and therefore the workload on my wife is my primary concern.
I am considering getting a laryngectomy. But I am concerned about the work required for my wife.
The information from my doctor and online lead me to think it is not too much work, but I would like to hear from PALS that have had one or caregivers for someone who did.
Did you find that it required the intense 24/7 care like a trach does?
How many suctionings a day were required?
Were night suctions a regular occurrence?
Pros and cons in general?
If you had to decide again now would you do it again?
I appreciate any information.
Thanks
Doug