SarahKatherine
Member
- Joined
- Sep 8, 2014
- Messages
- 11
- Reason
- CALS
- Country
- AUS
- State
- NSW
- City
- Sydney
Hi everyone
I'm new to this forum not sure what to write so I'll tell you my story
I'm 17 years old, last year my mum was diagnosed with ALS/MND I go to school most days and care my for my mum after school, at night and on the weekends. My dad doesn't help, my brother lives far away so it's just me.
My mum can't move her legs and can barely lift her arms and her voice is deteriorating..
We live in a rural area and receive every little help during the day her friend helps, but the rest is up to me. I do everything.
My HSC/final exams are coming up and I'm so physically and emotionally drained that last thing on my mind is school. I get about 4 hours sleep every night.
My mum is very emotional and I wish I could ease her pain. It's devastating
But I'm so happy I found a place where there are people going through the same thing
Anyways, I recently started giving my mum a powder called "L serine", I give her 8 grams twice a day. Since she' started 2 weeks ago she has found little improvements such as more energy, slightly more movement in her arms.
I was wondering if anyone else out there is taking the powder, if so, how much? And what improvements have you found? And is there any other medicine that helps.. It is worth trying it really is.
There is hope out there I know it...
I'm looking forward to talking to all of you and making friends
Thanks
Sarah xxx
I'm new to this forum not sure what to write so I'll tell you my story
I'm 17 years old, last year my mum was diagnosed with ALS/MND I go to school most days and care my for my mum after school, at night and on the weekends. My dad doesn't help, my brother lives far away so it's just me.
My mum can't move her legs and can barely lift her arms and her voice is deteriorating..
We live in a rural area and receive every little help during the day her friend helps, but the rest is up to me. I do everything.
My HSC/final exams are coming up and I'm so physically and emotionally drained that last thing on my mind is school. I get about 4 hours sleep every night.
My mum is very emotional and I wish I could ease her pain. It's devastating
But I'm so happy I found a place where there are people going through the same thing
Anyways, I recently started giving my mum a powder called "L serine", I give her 8 grams twice a day. Since she' started 2 weeks ago she has found little improvements such as more energy, slightly more movement in her arms.
I was wondering if anyone else out there is taking the powder, if so, how much? And what improvements have you found? And is there any other medicine that helps.. It is worth trying it really is.
There is hope out there I know it...
I'm looking forward to talking to all of you and making friends
Thanks
Sarah xxx