JaimeOwl
New member
- Joined
- Nov 11, 2021
- Messages
- 5
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- RU
I’ve posted some times ago about my symptoms. I still have no diagnosis but my symptoms became a lot worse.
So I want to ask you a question. Mostly diagnosed people.
Do you think Pals should know the diagnosis while he/she still can function like almost health person? I mean, in my case, I have a lot of weakness, breathing problems, pain, brisk reflexes, fasciculations. But I can do all things but with efforts of course.
Now I am considering the option to go to a doctor and redo EMG but it is highly possible that I receive diagnosis or will be have to have a lot of appointments to investigate it. Or I can live with some difficulties unless they become too obvious.
It is like I can have still normal life for some period and there is no treatment so the diagnosis won’t do something good or stop something.
So, can you give me your opinion. Based on your experience or just general point of view.
And another question.
I know that my family and some friends will be always by my side no matter what. But I don’t know about my boyfriend. I want to believe but I can imagine how difficult it is. But it is wrong to hide from him that something is wrong, right? I am really afraid of loosing him.
The last doctor (in fall) said that I have als syndrome. But I guess it’s the phrase when you can’t yet say the diagnosis because of lack of evidence?
So I want to ask you a question. Mostly diagnosed people.
Do you think Pals should know the diagnosis while he/she still can function like almost health person? I mean, in my case, I have a lot of weakness, breathing problems, pain, brisk reflexes, fasciculations. But I can do all things but with efforts of course.
Now I am considering the option to go to a doctor and redo EMG but it is highly possible that I receive diagnosis or will be have to have a lot of appointments to investigate it. Or I can live with some difficulties unless they become too obvious.
It is like I can have still normal life for some period and there is no treatment so the diagnosis won’t do something good or stop something.
So, can you give me your opinion. Based on your experience or just general point of view.
And another question.
I know that my family and some friends will be always by my side no matter what. But I don’t know about my boyfriend. I want to believe but I can imagine how difficult it is. But it is wrong to hide from him that something is wrong, right? I am really afraid of loosing him.
The last doctor (in fall) said that I have als syndrome. But I guess it’s the phrase when you can’t yet say the diagnosis because of lack of evidence?