candace
New member
- Joined
- Oct 1, 2007
- Messages
- 3
- Reason
- DX UMND/PLS
- Diagnosis
- 01/2003
- Country
- US
- State
- CA
- City
- CARMEL VALLEY
Hi, it sounds like my story. I was first told I had ALS and after a few years I was told it was PLS. I am so grateful for the PLS diagnoses, It is still a difficult disease to deal with but not anywhere as scary as ALS. I had many of the same conditions as you have stated. It seemed to change as it progressed. I can say it is different for everyone. I am thrilled to say that I haven't progressed in 2 years now. I go to a clinic every six months and get tested. I can still drive and live alone most of the time. If you have a wife to help you, you are truly blessed.
My advise is to stay out of fear as much as you can, the stress is very hard on our disease. I just stay as grateful as I can and not go into what might happen. I find it never works out the way I planned and it is always the worse case I have come up with. I feel blessed to have the capabilities I still have.
Candace
My advise is to stay out of fear as much as you can, the stress is very hard on our disease. I just stay as grateful as I can and not go into what might happen. I find it never works out the way I planned and it is always the worse case I have come up with. I feel blessed to have the capabilities I still have.
Candace