Angie, I'm sorry about your mom and for you for having to live with that nagging fear. I have SALS not FALS but from what little I know of the latter, it seems to progress quite quickly. Five years seems like a very long time to have symptoms and no diagnosis. If I were you, I would be taking Vitamin E daily. People must be tired of me saying this but a huge health study by Harvard Medical School in 2004? found the incidence of ALS among people who had been taking Vitamin E for 10+ years was 62% lower than among the population at large. Worth a try.My mom is from St. Paul, MN. Diagnosed two weeks ago. Maternal grandmother diagnosed in her eighties. I am from MN but currently live in Anthem, AZ. I'm guessing I have ALS too. Been struggling for five years.
Angie in AZ