Katalin
Distinguished member
- Joined
- Sep 22, 2018
- Messages
- 114
- Reason
- Lost a loved one
- Diagnosis
- 05/2018
- Country
- CA
- State
- Ontario
- City
- Toronto
We were never able to get to clinic to get things checked out: she was really weak, and they offered to send a respiratory therapist to her home, so we didn't need to go. They eventually recommended Ativan, sublingual, but we didn't have a chance to use it often.
She was mostly able to relax her way out of it, and occassionally used a little thing I put together for her, which was a stick pen, with the ink tube pulled out, and she'd breathe through the narrow end of it. I put yellow tape on it so it was highly visible and she was able to grab that and inhale through it. It seemed to work, but she was resistant also to doing much when she had them.
She passed away two days ago after a really hard struggle with breathing, almost completely unable to swallow and her speech was almost unintelligible. She died at home and I was by her side, madly trying to get the right palliative meds into her, and only in the final hour was she finally comfortable.
I wish I'd thought of the baclofen to tell the palliative team, instead I only remembered the Ativan type meds. They didn't control her laryngospasms well. They're not that common. I regret that, but I know I couldn't think of everything. People, get palliative involved early. We could have made her passing so much easier if we had...instead, we had a mixup with the physician and the referral didn't go through fast enough. She just declined so very fast.
She's at peace now. I'll need a break from all this, so thank you ALL from the bottom of my heart for your help and hand-holding and good kindness. I'll never forget you all!
She was mostly able to relax her way out of it, and occassionally used a little thing I put together for her, which was a stick pen, with the ink tube pulled out, and she'd breathe through the narrow end of it. I put yellow tape on it so it was highly visible and she was able to grab that and inhale through it. It seemed to work, but she was resistant also to doing much when she had them.
She passed away two days ago after a really hard struggle with breathing, almost completely unable to swallow and her speech was almost unintelligible. She died at home and I was by her side, madly trying to get the right palliative meds into her, and only in the final hour was she finally comfortable.
I wish I'd thought of the baclofen to tell the palliative team, instead I only remembered the Ativan type meds. They didn't control her laryngospasms well. They're not that common. I regret that, but I know I couldn't think of everything. People, get palliative involved early. We could have made her passing so much easier if we had...instead, we had a mixup with the physician and the referral didn't go through fast enough. She just declined so very fast.
She's at peace now. I'll need a break from all this, so thank you ALL from the bottom of my heart for your help and hand-holding and good kindness. I'll never forget you all!
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