- Jul 2, 2008
- Learn about ALS
Here's an update for those of you who are following my saga. I just retuned from the MDA/ALS clinic. I saw an RN, Respitory Therapist, an Occupational therapist and the ALS Dr all this morning. The ALS Dr. does not believe I have ALS, my reflexes were normal to diminished and 60% strength on my both my ankles. I did have some weakness when trying to pull up my legs. Everything else was 100%. So instead of the MDA /ALS clinic they are going to switch me to the regular MD side and are leaning towards SMA or a type 2 CMT. The occupational therapist said I had classic CMT feet. I am very cautiously optimistic, once again I will continue to live as if I don't have ALS until something else comes up. Thanks everyone for your previous input. I am not sure I spelled "respitory" correctly.