Mike84
Member
- Joined
- Oct 25, 2020
- Messages
- 10
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- GREAT BEND
Hi, I used to post on this forum back in October when my symptoms first started. I am still having symptoms, including twitching, muscle pain and fatigue, as well as some occasional cramping. Since then I have had 5 EMGs, all of which came back normal. I had two done by my regular neurologist in October and November. I then had two done by a neuromuscular specialist in March and April. And yesterday I had one done by an ALS specialist that included putting the needle into my tongue from under my chin, neck muscles, and the whole right side of my body. He said he did find fasiculations in my calf but said they looked like benign fasiculations and looked different from ALS fasiculations. Other than that all my testing was normal including my clinical exam. I have now had 4 different neurologists tell me I don't have ALS and they think i have BFS (benign fasiculation syndrome). My question is: can I rule out ALS at this point after 8 months of symptoms and 5 normal EMGs? I have read stories of people needing years to diagnose and having many clean EMGs before something shows up. This is why I still worry. Thank you for any help.