Just had my 5th EMG

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Mike84

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Hi, I used to post on this forum back in October when my symptoms first started. I am still having symptoms, including twitching, muscle pain and fatigue, as well as some occasional cramping. Since then I have had 5 EMGs, all of which came back normal. I had two done by my regular neurologist in October and November. I then had two done by a neuromuscular specialist in March and April. And yesterday I had one done by an ALS specialist that included putting the needle into my tongue from under my chin, neck muscles, and the whole right side of my body. He said he did find fasiculations in my calf but said they looked like benign fasiculations and looked different from ALS fasiculations. Other than that all my testing was normal including my clinical exam. I have now had 4 different neurologists tell me I don't have ALS and they think i have BFS (benign fasiculation syndrome). My question is: can I rule out ALS at this point after 8 months of symptoms and 5 normal EMGs? I have read stories of people needing years to diagnose and having many clean EMGs before something shows up. This is why I still worry. Thank you for any help.
 

ShiftKicker

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Hello- previous threads here:



I think you've answered your own question? 4 different neuros, 5 separate EMGs all indicate no ALS. Multiple normal clinical exams and no clinical changes over the course of 8 months as well. What would you need to hear from the people here that you have not already been told by these specialists and excellent test results? We always recommend people trust their doctors and the good news indicated with EMG results that state no signs of ALS.
 

Mike84

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Thank you for the response. I just worry that I may have done the EMGs too early, or they missed something, or maybe ALS doesn't show on an EMG unless you have clinical weakness. I just hope these doctors are right. I know it's highly unlikely 4 of them would be wrong, especially an ALS specialist.
 

ShiftKicker

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You are absolutely right about that! I really hope you'll be able to move on from thinking about ALS- you've received some seriously excellent news about your health. We get many people here worried it's too soon, the doctors missed something, etc and there's really nothing we can do to provide more reassurance when folk are in that headspace and can't trust the collective knowledge of that many neurologists. Please take care and hope you will be able to move on from ALS in your thoughts.
 

Bestfriends14

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Mike, what are you doing here? In October you said you had just been diagnosed with ALS, which was not true. Now, you're back with a 5th EMG clearing you of ALS....again! I cannot for the life of me figure why anyone would want to say they had ALS, knowing full well they did not. Pity? Attention? I just don't get it.

Mike, please, for your own wellbeing and for the love of your beautiful children, go seek counselling. You don't have ALS and I think deep down you know it, but for some reason, don't want to accept that. I would ask your counsellor to talk about facticious disorder and nosophobia a disorder. Please, have a heart, this is a site for folks with ALS and their very tired caregivers. You are neither, thankfully. Please be grateful for this.

Do take care and be well.
 
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