nnhood
New member
- Joined
- Apr 25, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- PA
- City
- Beaver Falls
In 2018 I had what felt like a viral infection, like something going through my system. Got all kind of virus checks done, HIV, HTLV, Mono, Hep Panel, STD Panel... nothing showed up. Got tested for Lyme, had 3 normal EMG's at different places. That odd feeling of something going through my system subsided and was replaced with what seems to be slow muscle loss in my legs mainly but a little in my arms. I'm functional, but starting to notice some slight balance issues.
Just had the biopsy done and it's attached here. Really didn't say anything other than wait for progression. Which I've been waiting since 2018.
I was worried about Inclusion Body Myositis after Cleveland Clinic just had me walk on my tippy toes basically and said you don't have ALS... I'm like I know not right now, I'm saying could I have it 5 years from now, am I at the beginning stages.
Only thing that has been off and on abnormal in blood work is Sed Rate which goes between 2 and 30. I exercised at different machines in a gym and then was very sore the next day and urinated blood for 4 days, hematuria... then that went away. Excessive sweating/heat intolerance. Exertion makes it worse whatever it is. Normal walking is fine, I can run too... but probably could not do 45 minutes on a treadmill jogging.
Just wondered if anyone had similar symptoms or biopsy results and then found out it was this or that... thank you very much, Matt
Just had the biopsy done and it's attached here. Really didn't say anything other than wait for progression. Which I've been waiting since 2018.
I was worried about Inclusion Body Myositis after Cleveland Clinic just had me walk on my tippy toes basically and said you don't have ALS... I'm like I know not right now, I'm saying could I have it 5 years from now, am I at the beginning stages.
Only thing that has been off and on abnormal in blood work is Sed Rate which goes between 2 and 30. I exercised at different machines in a gym and then was very sore the next day and urinated blood for 4 days, hematuria... then that went away. Excessive sweating/heat intolerance. Exertion makes it worse whatever it is. Normal walking is fine, I can run too... but probably could not do 45 minutes on a treadmill jogging.
Just wondered if anyone had similar symptoms or biopsy results and then found out it was this or that... thank you very much, Matt
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