chrisroski
Active member
- Joined
- Apr 12, 2012
- Messages
- 93
- Reason
- PALS
- Diagnosis
- 01/2012
- Country
- US
- State
- Pa
- City
- Philadelphia
I just got my bipap machine yesterday. I have bulbar als and mouth does not stay closed unless I try to hold it closed. The RT gave me a full mask that covers nose @ mouth, not very comfortable and of course with the drooling I have to keep putting paper towels under the mask. He also left me the pillow one that has a chin strap that is more comfortable, but for some reason it makes my nose burn. I do have a heat humidifier on this anybody every have that problem, and just how long does it take to get used to this thing? I'm sure different for everyone. Any ideas or suggestions would be appreciated. I cannot imagine sleeping with this on. I kept on for 2 hrs yesterday afternoon watching to and 2 last night doing the same, then I took it off.