- Feb 5, 2014
Thank you for all your posts. I feels good that people care enough to respond. We have been connected with MDA and an ALS Clinic and they have been very helpful! After a couple crazy days with some big falls we have let the idea of the stair lift go and are moving downstairs. How long did you find when your legs became weak and started going out from under you did you find you needed a wheelchair? I will read the book you suggested, I find those that have been suggested so far to really be helpful and give me insight into what we are dealing with. I try to let him make the decision and I follow his lead but I cannot stand by and watch him get hurt when I know we can be smarter and safer. Our children have good days and bad days. When they see him struggle or get hurt it takes a toll on them. They are in counseling and I think that is helpful but each deal with it in different ways. I know that at this point we are in the easy stages and the worst is yet to come. I long for the life we had. I have to ask another question...How do you deal with friends and family giving you advice on alternative medicine, getting your house ready and how you are handling life situations? I want everyone's help and thoughts but sometimes it is all to much to digest. I also don't want to hurt anyone's feeling.