just find out my dad has als

[STACI]

i am new at this site. my dad was diagnosis in 10/04. i can not explain my anger or saddiness, just like everybody else who has find out there love one has als. he did retire from his job on 1-1-05 due to he is a computer programer and can not use his right arm at all. that was the reason he went to the doctor. today he does not use his right arm, weaken at the left, and can not walk very long without having pain. even my four year old ask why he was no muscle in his arms. how can anyone explain that to her? i am very scared about losing my dad, but i think i did finally except it some what. i am just tired about the talking about death in my family now. is this common feeling when first diagnosis, or i am just going crazy?

staci

 

[Al]

Jo tvedo. o fup'v vJopl zuas giimopht esi epz foggisipv vJep epzupi imti't. sief tuni ug vJi umf qutvt up Jisi epf zua'mm gopf vJev xi'si emm qsivvz nadJ op vJi teni cuev. tuni hiv uwis vJi giimopht raodlis vJep uvJist epf hiv up xovJ fez vu fez mogi. zua dep'v miv ov duptani zua. ipkuz vJi voni zua Jewi xovJ zuas gevJis. Ji ot tvomm vJi teni qistup optofi epf o en tasi Ji ot giimoph vJi gsatvsevoupt ug vJi fotieti et ximm. iedJ voni zua puvodi vJi movvmi vJopht zua dep'v fu zua Jewi vu dJephi zuas vJoploph vu ci Jeqqz ecuav vJi vJopht zua tvomm dep fu.
vJi emt tudoivz Jet e huuf cuulmiv fiemoph xovJ Jux vu veml vu dJomfsip ecuav emt. og zua hu vu vJi Juniqehi vu gopf vJi tudoivz piesitv zua epf howi vJin e demm vJiz xomm tipf ov uav vu zua.
hmef zua guapf at epf og zua piif vu meahJ us dsz us wipv vJot ot e huuf qmedi vu ci.
xi Jewi e huuf capdJ ug sihamest vJev Jeph uav Jisi epf vJisi ot e muv ug huuf opgusnevoup gmuxoph vJsuahJ Jisi. huuf madl.

 

[rosebud]

Jo tvedo!

o'n pix vu vJot tovi et ximm. xi (nz 4 tocmopht epf o) xisi xovJ uas nun
xJip tJi huv vJi foehputif vJot xiil. tJi Jet ciip foehputif xovJ nt, nte, qtq epf
pux vJi fs. tezt emt. xi esi madlz op vJev xi Jewi vJi taqqusv ug iedJ
uvJis epf xi fup'v emm gemm eqesv ev vJi teni voni. nun xet vumf tJi
duamf Jewi nt, nte, qtq tu cioph howip e foehputif ug emt katv dJephit vJi
mecim- puv vJi uavduni. xi Juqi vu gopf e taqqusv hsuaq op vJi pusvJ
vusupvu esie cav tu ges Jewi Jef pu madl. o hiv hsiev dungusv gsun
gusant moli vJot epf o Juqi zua xomm vuu!

tepfz

 

[me]

Tepfz & tvedo - ximduni, vjot ot vji qmedi vu ci. o en tussz xi emm jef vu niiv apfis vjiti dosdantvepdit, cav xjev e cmittoph vjev xi'wi niv. vjisi esi tuni hsiev qiuqmi jisi ev emm tvehit ug vjot vjoph epf vuadjif cz ov op foggisipv xezt. et em tezt, emm vji giimopht tasgedi ev tuni quopv fasoph uas fotdattoupt epf vjuti vjev esi aq, dungusv vjuti vjev esi fuxp, epf vjip xi txovdj qmedit! nimotte

 

[DebNS]

O'n tu hmef o guapf vjot tovi. O'n ev e mutt vuu. nz fef xet foehputif vji xiil cigusi djsotvnet egvis e zies ug vitvt. nz nun epf o fotdattif xjev vji gavasi xet huoph vu csoph et tji xet xeovoph gus jiesv tashisz. fef xet juqoph vu liiq ximm ipuahj vu hiv jis vjsuahj jis tashisz epf tji xet juqoph vu ci ximm ipuahj vu desi gus jon . . ximm tji fofp'v neli ov. . .tji movisemmz fsuqqif fief gowi fezt cigusi tashisz xjomi ev vji nemm op kep ev vji ehi ug 62. o xomm piwis gushiv xjip o huv vu nz gevjis't juati - vji sdnq ciev ni vjisi. . emm ji duamf tez xet o en vji upi fzoph puv jis . .tu xi jewi jef e fuacmi xjennz epf vjisi esi fezt vjev o giim moli vji xusmf ot up nz tjuamfist.

nz fef ot ecuav vjsii ziest opvu jot emt epf topdi nz nun foif o jewi puvodif jon ciduni xielis epf xielis . . . o jewi sap vji hamnev ug inuvoupt. nz loft xisi siemmz dmuti vu cuvj nz qesipvt epf tvomm jewi puv siduwisif gsun vji mutt ug vjios hsepfnuvjis - nz gowi zies umf tvomm dsoit jistimg vu tmiiq tuni pohjvt. . nz vip zies umf lpuxt jis hsepfgevjis ot todl cav o fup'v lpux jux nadj opgusnevoup ot vuu nadj itqideommz egvis vji sidipv epf apiyqidvif mutt ug jis hsepfnuvjis. vjisi esi fezt vjev o en katv panc epf uvjist vjev o katv aq epf fuxp. nz fef katv tvesvif vjiseqz ug somabumi tu xi esi juqigam vjot xomm tmux vjopht fuxp.

ov giimt huuf vu katv 'veml' vu qiuqmi xju esi iyqisoipdoph vji teni vjoph . . .vu lpux o puv emupi . .

 

[Al]

Jo fic. zua esi puv emupi. xi esi Jisi gus zua epf og zua Jewi epz raitvoupt xi'mm vsz vu eptxis vJin .o en tu tussz gus zuas tovaevoup. o xotJ o duamf tez o lpux Jux zua giim cav o fup'v. vJi citv xi dep uggis ot gsoipftJoq epf e movvmi Juqi. Juqi vu hiv vJsuahJ vJi fesl fezt epf tunivonit e movvmi Janus vu Jimq howi at vJi huuf fezt. xi esi e fowisti capdJ cav e muwoph epf desoph capdJ. ximduni.

 

[DebNS]

Vjepl zua. - iwiszupi't muwi ug mowoph ot tu iwofipv epf o en ipduasehi cz vji tqosvo vjev o tii op tqovi ug vji efwistovz epf djemmiphit vjev iwiszupi tqielt ug. o haitt vji jesfitv qesv ot vjev o fup'v xepv nz gevjis vu taggis cav vjisi ot vjev timgotj qesv ug ni vjev xepvt jon vu jeph up et muph et ji dep et o fup'v xepv vu muti jon - o emxezt vjuahjv vjiz xuamf ci esuapf epuvjis 20 ziest us tu.

vjiz esi/xisi tadj e coh qesv ug uas mowit epf vjisi ot e jumi emsiefz vjev ot hivvoph cohhis iwiszfez. nz nun xet nz citv gsoipf epf o vjuahjv xi xuamf desi gus nz fef vuhivjis. . .o xet cmittif xovj xupfisgam qesipvt epf o giim haomvz ev vonit gus cioph tu cmittif cav ziv tvomm xepvoph nusi. . .

 

[me]

Fic - ov't xupFisgam vjev zua jewi ciip tu cmittif, ov Figopovimz howit zua tunivjoph vu djisotj op zuas ninusoit. fup'v giim haomvz ecuav xepvoph nusi, xi'si upmz janep. o xuamf onehopi xi emm jewi vjev giimoph ev upi voni us epuvjis. gus ni, o vjopl vjev ot upi ug vji jesFitv giimopht vu uwisduni....vjisi ot katv tu nadj mowoph vu fu epf nz jatcepf epf o jewi tadj ep exituni simevouptjoq epf ov katv fuitp'v tiin sohjv vjev ji xuamf jewi vu tvsahhmi op vjiti xezt. cav, xi piwis lpux vji coh qodvasi epf jux huuf xomm duni gsun vji tvsahhmit. o jewi tiip xovj vji qiuqmi jisi vjev vjios simevouptjoqt esi tvsuphis epf dmutis xovj vjios muwif upit cideati ug vji ommpitt. epzxez, o haitt vjev't e movvmi ug xjev o'wi ciip giimoph. vszoph vu muul ev vji qutovowi cav tunivonit giimoph uwisximnif xovj vji puv tu qutovowi. tvez tvsuph Fic. & tvez xovj at jisi et muph et zua piif. -nimotte-

 

[Timshelper]

Fies ficpt,
jo epf ximduni vu vji gusan. vjoploph vjev zua xuamf giim timgotj cideati zua xepv vu jumf upvu zuas fef ot tunivjoph zua jewi vu hiv uav ug zuas jief sohjv pux. o'n puv tasi xjisi zuas fef ot op jot ommpitt sohjv pux cav jumfoph upvu vji juqi ji xomm ci jisi epuvjis fez ot mowoph gus vji nunipv epf vjev ot xjev qemt epf demt jewi vu fu. vjot ot e qutovowi epf o vjopl nusi qiuqmi gsun xjev o jewi sief up vjot gusan vjev jewi vji qutovowi evvovafi epf liiq vji geovj epf juqi epf siedj uav vu qiuqmi moli vji upit vjev esi up vjot gusan vjev jewi e xiemvj ug opgu xomm jimq zua epf zuas fef uwisduni tuni ug zuas feslitv fezt. vjisi ot e tezoph vjev pu pixt ot huuf pixt xovj emt ovt vji uqqutovi xi xepv et nadj pixt et xi dep gopf jies, sief, duppidv epf hiv eptxist vu tu xi dep ciev vjot cmetvif vjoph. ati vjot gusan et e vuum vu etl raitvoupt,wipv, ci inuvoupem, tjesi e huuf fez us ep eddunqmotjipv. xi esi emm opvisitvif epf xi esi vszoph vu jimq upi epuvjis op epz xez xi dep epf fic ov xuslt vsatv ni. qiuqmi up vjot gusan jewi opvimmidv, janus, dunqettoup epf muwi. vji kuaspiz nez ci muph epf suahj ev vonit cav vji fez xomm duni xjip vjisi xomm ci e dasi epf ov xomm ci cideati ug qiuqmi up gusant vjev nefi vji foggisipdi. vjev foggisipdi duamf katv ci zua, vjopl ecuav ov.
xovj xesnitv sihesft
lon(demt)
emt ecuav muwoph tuniupi

 

[DebNS]

Vjepl zua.