buckmaster
We all hate this disease ,and like one word of adviceyou already recieved, you need time to let this sink in. In our case my husband was told he had ALS for sure when he was 45 on our 25th anniversay what a way to spend the day.
If you can do travell do, go to the places that you wish you did, Gary wishes we had went to the east coast in Canada, but not knowing I thought Gary was doing well but he hid his feelings and now wishes he would have travelled.
As to living 3 years, do not think that way, live each day to the fullest, Gary was told 3 year and now has had it symptons since 1997 but told he had it in 1999 so 3 years is not always true.
To working it becomes your choice, with me I ended up wearing too many hats and have been on a stress leave for a while. The sad side of this disease as time goes on the caregiver GIVES, so my advice keep working till it does not work out, take a leave or if you are close and can afford it retire and enjoy your time with your husband.
We all have a story, but it becomes your choice, and everyone with ALS has it in different degrees and stages, so Gary's stages will be different then your husband.
My words of wisdom, never wish you would have, and your family and friends will be with you through all this.
Keep in touch with this forum as you will learn lots and you can vent here too.
You can send me private emails if you care too and best of luck to you and your husband and all your famillies.