Bluenadski
Member
- Joined
- Sep 23, 2007
- Messages
- 17
- Reason
- Loved one DX
- Diagnosis
- 09/2007
- Country
- Sco
- State
- Lanarkshire
- City
- Glasgow
HI there!
I was reading you forum in interest and would like to ask a few questions relating to bulbar palsy.
My mother was diagnosed (clinical diagnosis) on Thursday last week.
The symptoms started in April. She had a very sore throat and doctor gave some pain killers - saying it was probably a virus. She also said that she had a verbal confrontation with a work colleague and that during this she felt something 'ping or snap' at the back or base of her tongue , this pain has not subsided. Around the same time she began to slur some words - however this co-incided with her front denture plate slipping (very poor fitting).
However, I'm a little confused and would like your feedback.
I know there should be little to no pain asociated with ALS - but my mother has been complaining of pains in her neck and the side of her tongue. She feels as though the neurologist has completely dismissed this. They have performed an (ETG? I think thats what its called) It has shown excellent electrical impulses to all areas of her body. But It seems they did not perform this on her neck/tongue area.
She has had MRI scans, and various blood tests - and latest ETG tests (taken prior to consultation) will not be available until Tuesday this week. My mother has been resident for testing at the hospital for 5 days when this was diagnosed.
I feel on the whole the consulting team have been a little premature.
What are your experiences? can someone advise general diagnostic protocol?
Thank you!
I was reading you forum in interest and would like to ask a few questions relating to bulbar palsy.
My mother was diagnosed (clinical diagnosis) on Thursday last week.
The symptoms started in April. She had a very sore throat and doctor gave some pain killers - saying it was probably a virus. She also said that she had a verbal confrontation with a work colleague and that during this she felt something 'ping or snap' at the back or base of her tongue , this pain has not subsided. Around the same time she began to slur some words - however this co-incided with her front denture plate slipping (very poor fitting).
However, I'm a little confused and would like your feedback.
I know there should be little to no pain asociated with ALS - but my mother has been complaining of pains in her neck and the side of her tongue. She feels as though the neurologist has completely dismissed this. They have performed an (ETG? I think thats what its called) It has shown excellent electrical impulses to all areas of her body. But It seems they did not perform this on her neck/tongue area.
She has had MRI scans, and various blood tests - and latest ETG tests (taken prior to consultation) will not be available until Tuesday this week. My mother has been resident for testing at the hospital for 5 days when this was diagnosed.
I feel on the whole the consulting team have been a little premature.
What are your experiences? can someone advise general diagnostic protocol?
Thank you!