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shadypenguin

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Joined
Jan 11, 2016
Messages
5
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Country
US
State
CA
City
LA
Does anyone else on this forum have it? I'd appreciate asking you some questions and what not.

For anyone who sees this and doesn't know, it's a "benign" motor neuron disease and/or a spinal cord damage condition and/or an immune response that causes 1-2 years of progressively worsening muscle wasting and weakness in the hands and arms and then stops progressing. Non-fatal, usually doesn't spread past the arms.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
9,622
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
I think a few people have passed through the forum with this so a search may yield up some patient information. If you find anyone you wanted to connect with you can see on their profile page the date of their last visit in case they have been lurking. You could leave a visitor message on their page. Visitor messages can be seen by any member of the forum so don't put private info there

Sorry you have this but glad it is not ALS
 
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