blkbrd
New member
- Joined
- Jan 18, 2022
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- OR
- City
- Portland
Still in shock really. I don't know what to say. I just had an appt w/ neuro and had the EMG. Based upon those findings and my MRI results he feels quite confident that this is ALS.
Brief history: Started around May with the sensation that I wasn't getting a full breath. I kept trying to breathe deeper and eventually began to have fuller breaths. A bit later I started to lose my voice and I had an itch in the back of my throat. After that I began to have muscle twitching in my left arm, which later moved to my right. I've had pins and needles in my arms and face. Stiff achy joints with weird sensations. Difficulty swallowing.
As I said, am in shock. I didn't ask enough questions. The only thing I was able to ask was "I thought you couldn't see ALS in an MRI?" He said in rare cases you can.
Any advice on how to prepare for my second opinion? What do I ask? I didn't even see my MRI. Should I ask to see it and have it explained further?
I thought it can take a year to diagnose this, why is it so obvious in me? I just went to my first appt a month ago! I thought this was a 'failing not feeling' condition? Should I not be having pins and needles in my face? Sorry, ranting.
Any advice would be greatly appriciated.
Corbin
Brief history: Started around May with the sensation that I wasn't getting a full breath. I kept trying to breathe deeper and eventually began to have fuller breaths. A bit later I started to lose my voice and I had an itch in the back of my throat. After that I began to have muscle twitching in my left arm, which later moved to my right. I've had pins and needles in my arms and face. Stiff achy joints with weird sensations. Difficulty swallowing.
As I said, am in shock. I didn't ask enough questions. The only thing I was able to ask was "I thought you couldn't see ALS in an MRI?" He said in rare cases you can.
Any advice on how to prepare for my second opinion? What do I ask? I didn't even see my MRI. Should I ask to see it and have it explained further?
I thought it can take a year to diagnose this, why is it so obvious in me? I just went to my first appt a month ago! I thought this was a 'failing not feeling' condition? Should I not be having pins and needles in my face? Sorry, ranting.
Any advice would be greatly appriciated.
Corbin