tledfh
New member
- Joined
- Jun 6, 2018
- Messages
- 4
- Reason
- Loved one DX
- Diagnosis
- 07/2018
- Country
- US
- State
- IL
- City
- Grayville
My PALS has just been diagnosed and not had their first visit at the ALS clinic where they will meet with all of the specialists, occupational therapists etc. she had neck surgery 9 months ago and symptoms increased after that, she was diagnosed with locked shoulder and treated for that for well over 2 months, as her weakness of both arms continued.
She has gone from working a job of 40 years and driving, and tKing care of a home to, unable to work, no ability to drive, and can barely lift her arms In a matter of 3 months, she tires so easily, has difficulty breathing at times, can not sneeze or cough, clear her throat. She walks with very little difficulty, everything is in her arms, chest, and neck.
This is all very new to us and yet seems to be pretty advanced already, we have no idea on things to make her life more accessible and so far all I have researched is geared towards people losing strength,use, of their legs. My PALS can not readjust in bed already, having trouble raising utensils and glasses to her mouth etc. please any help on where to even get started, she has got to start getting some rest. Thanks
She has gone from working a job of 40 years and driving, and tKing care of a home to, unable to work, no ability to drive, and can barely lift her arms In a matter of 3 months, she tires so easily, has difficulty breathing at times, can not sneeze or cough, clear her throat. She walks with very little difficulty, everything is in her arms, chest, and neck.
This is all very new to us and yet seems to be pretty advanced already, we have no idea on things to make her life more accessible and so far all I have researched is geared towards people losing strength,use, of their legs. My PALS can not readjust in bed already, having trouble raising utensils and glasses to her mouth etc. please any help on where to even get started, she has got to start getting some rest. Thanks
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