PaulBerger
New member
- Joined
- Aug 24, 2017
- Messages
- 4
- Reason
- PALS
- Country
- us
- State
- oregon
- City
- portland
I have just been diagnosed by two ALS specialists at OHSU and Providence. Am academic shrink not sure if that is helpful. Don't have any upper motor neuron signs (bilateral babinski, bilateral hoffman and jaw jerk WNL) and have normal reflexes except for brisk knee reflex which I have always had. Notably my fasciculations disappear with sleep. Have no fasciculations either falling asleep or upon awakening. Was taught during Yale psychiatry residency that tardive fasciculations disappear with sleep (and took quetiapine to cope with divorce) whereas neuromuscular fasciculations don't. A google book search plugging in sleep als and fasciculations confirms this with Dejong saying page 507 that fasciculations continue during sleep and spouses observing fasciculations in sleeping ALS husband or wife.
Is there any hope of my not having ALS. Oddly I have a third neurologist who is not an ALS specialist who has been more conservative on making the diagnosis. It is from her that I got the information on not having upper motor neuron findings. I would appreciate any comment from the Neurologists or expert lay people that frequent this forum.
Is there any hope of my not having ALS. Oddly I have a third neurologist who is not an ALS specialist who has been more conservative on making the diagnosis. It is from her that I got the information on not having upper motor neuron findings. I would appreciate any comment from the Neurologists or expert lay people that frequent this forum.